National Down Syndrome Society

06/12/2026

Big news! CARE Down Syndrome is now featured on AMA Ed Hub, the American Medical Association’s online learning platform. 🎉

CARE Down Syndrome is an initiative from the National Down Syndrome Society that empowers healthcare professionals with knowledge and resources to meet the unique healthcare needs of adults with Down syndrome to help support informed, high-quality care.

The education featured on AMA Ed Hub includes free, CME-accredited content covering key topics such as Alzheimer’s disease, mental health, and other common health conditions. Be sure to share, visit AMA Ed Hub and enroll in CARE Down Syndrome today! https://edhub.ama-assn.org/national-down-syndrome-society

06/12/2026

Father's Day is just around the corner! Show appreciation for the dads and father figures who help their loved ones thrive with some NDSS merch! Our THRIVE collection features sizes for the whole family and supports NDSS' mission. 💙💛

Shop NDSS at https://ndssorg.myshopify.com

06/10/2026

BIG NEWS! 📢 The Senate HELP Committee will hold a markup on June 17 to vote on the Charlotte Woodward Organ Transplant Discrimination Prevention Act!

Charlotte’s bill will protect the rights of individuals with disabilities in the organ transplant system. We need YOU to contact your Senators using the link below and let them know why this legislation is so important for the Down syndrome and broader disability community.

👉 https://ndss.quorum.us/campaign/111217/

06/09/2026

Thank you to our partners Global Down Syndrome Foundation for their work to advance the DeOndra Dixon INCLUDE Project Act, which recently passed out of the House Energy and Commerce Committee! 👏

06/08/2026

The next time the internet decides to talk
about Down syndrome, let’s give a platform to people
that actually have it. 💙💛

06/07/2026

"Together we stand strong in our commitment to ensuring that every conversation about Down syndrome is guided by accurate information, current medical knowledge, lived experience, and respect for the dignity and potential of every person." 🩵💛

The Global Down Syndrome Foundation, the National Down Syndrome Congress, and the National Down Syndrome Society have teamed up to publish the third edition of the groundbreaking Prenatal & Newborn Down Syndrome Information Pamphlet, available in English, Spanish and Icelandic. The third edition

06/05/2026

When receiving a Down syndrome diagnosis, 61% of parents reported experiencing negative bias about Down syndrome from medical providers, while 𝗳𝗲𝘄𝗲𝗿 𝘁𝗵𝗮𝗻 𝟰𝟬% 𝘀𝗮𝗶𝗱 𝘁𝗵𝗲𝘆 𝗿𝗲𝗰𝗲𝗶𝘃𝗲𝗱 𝗮𝗰𝗰𝘂𝗿𝗮𝘁𝗲, 𝗰𝘂𝗿𝗿𝗲𝗻𝘁, 𝗮𝗻𝗱 𝗯𝗮𝗹𝗮𝗻𝗰𝗲𝗱 𝗶𝗻𝗳𝗼𝗿𝗺𝗮𝘁𝗶𝗼𝗻 𝗳𝗿𝗼𝗺 𝘁𝗵𝗲𝗶𝗿 𝗱𝗼𝗰𝘁𝗼𝗿.

We, alongside other advocacy organizations, are working to improve the way that diagnoses are delivered, which includes healthcare professionals providing accurate, evidence-based information in a sensitive and informed way. We encourage anyone looking for more information on Down syndrome across the lifespan to visit ndss.org/lifespan/understanding-a-diagnosis-of-down-syndrome or utilize our helpline at 800-221-4602 and info-box at [email protected].

06/04/2026

The National Down Syndrome Society and Canadian Down Syndrome Society are excited to partner to expand the reach of NDSS’ CARE Down Syndrome initiative to clinicians across Canada. Together, we’re helping empower healthcare professionals with the knowledge and tools needed to better care for adults with Down syndrome. Learn more or check out our FAQ at careds.org.

06/03/2026

NDSS is grateful to members of the Down syndrome community, our sponsors and partners, and to the U.S. Food & Drug Administration for participating in the virtual meeting on Down syndrome-associated Alzheimer's disease (DS-AD) on June 2.
More than 160 people participated throughout the day. 𝗧𝗵𝗮𝗻𝗸 𝘆𝗼𝘂!

We are especially thankful for the 20 families who shared their personal stories via recording or live conversation, and the many more who submitted comments, participated in the live polling, or tuned in for the meeting. 𝗕𝘆 𝗿𝗮𝗶𝘀𝗶𝗻𝗴 𝘆𝗼𝘂𝗿 𝘃𝗼𝗶𝗰𝗲𝘀 𝗮𝗻𝗱 𝗯𝗲𝗶𝗻𝗴 𝗽𝗿𝗲𝘀𝗲𝗻𝘁, 𝘆𝗼𝘂 𝗶𝗻𝗳𝗼𝗿𝗺𝗲𝗱 𝘁𝗵𝗲 𝗙𝗗𝗔 𝗵𝗼𝘄 𝗗𝗦-𝗔𝗗 𝗶𝗺𝗽𝗮𝗰𝘁𝘀 𝘁𝗵𝗲 𝗹𝗶𝘃𝗲𝘀 𝗼𝗳 𝗮𝗱𝘂𝗹𝘁𝘀 𝘄𝗶𝘁𝗵 𝗗𝗼𝘄𝗻 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗮𝗻𝗱 𝘁𝗵𝗲𝗶𝗿 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀.

🚨 Didn't get the chance to tune in live or share your experience with DS-AD? The recording of the meeting is available at www.ndss.org/el-pfdd and the comment period is open until 𝗝𝘂𝗹𝘆 𝟭.

06/01/2026

NDSS was proud to attend the In Motion, In Community: Wellness for People with IDD/A and their Supporters kick off event last week! With support from the Eagles Autism Foundation Community Grant Award, the Jefferson Health FAB Center for Complex Care launched their six-session wellness initiative and gave every attendee an NDSS 321𝘨𝘰!® Fitness Kit. 👏