Epilepsy Agency of the Big Bend

09/09/2026

Thank you to everyone who joined us for Brainstorm: A Community Conversation About Epilepsy! ⚡️🧠

We’re so grateful to everyone who helped make this meaningful evening possible. Together, we shared stories, deepened our understanding of epilepsy, challenged stigma, and took another step toward building a more informed and supportive community. 💛

Stay tuned for more from us!

💜

09/02/2026

We’re looking forward to welcoming you tomorrow. To help you make the most of the evening, here are a few things to know before you go.

📆 Event Information:

Thursday, September 3, 2026
Reception & Meet the Filmmaker: 5:00 PM
Screening & Program: 6:00-7:30 PM

📌 Location:

Challenger Learning Center IMAX Theater
200 S. Duval Street, Tallahassee, FL 32301

🌟 Planning Your Visit:

Admission is free. Parking is available adjacent to the theater, and complementary parking validation and refreshments will be provided at check-in. A parking map is attached below for your convenience.

We encourage you to arrive during the reception beginning at 5:00 PM. This will give you plenty of time to check in, meet filmmaker Stacia Kalinoski, browse exhibits, and enjoy refreshments before the program begins.

Because the screening takes place in the IMAX Theater, guests arriving after 5:45 PM may need to wait for an appropriate opportunity to enter.

Please note: Brainstorm includes a brief flashing-light sequence that may affect photosensitive viewers.

There is still time to register! To sign-up click the link > https://forms.gle/A29v7vYQ8GHRDEU47

09/02/2026

Looking for ways to connect, learn, and find support this month?

Check out our September schedule for upcoming community events, educational opportunities, and support groups hosted by EABB.

Whether you’re living with epilepsy, supporting a loved one, or simply want to learn more, there’s a place for you with us.

✨ Save this post, share it with someone who may benefit, and join us throughout the month! Visit our event calendar for zoom links at www.eabb.org/calendar/

We hope to see you soon!

09/01/2026

What do sunflowers have to do with epilepsy? 🌻

This month’s newsletter features the story of Harper Nickerson, a 14-year-old living with Sunflower Syndrome, a rare form of photosensitive epilepsy.

This fascinating article offers a closer look at Sunflower Syndrome and the connection between light, vision, and seizures. It also explores an unexpected approach researchers have been studying: specially tinted blue contact lenses.

To read the full article, click the link below!

📧 Want to stay informed? Sign up for EABB’s monthly newsletter for more stories like this. Stay up to date by signing up at www.eabb.org.

A girl’s family became concerned when she started waving her hand hundreds of times a day. Finally diagnosed with a rare epilepsy, a surprising treatment made a “crazy” difference.

08/28/2026

We’re officially ONE WEEK AWAY from Brainstorm! 🎬

Join us September 3 for a special screening of Brainstorm, and a chance to meet filmmaker Stacia Kalinoski in person.

Admission is FREE. RSVP is required.

📍 Challenger Learning Center of Tallahassee
🕔 5:00 PM — Meet the Filmmaker & Reception
🎬 6:00 PM - 7:30 PM — Screening + Q&A

🔗 Registration Link >> https://forms.gle/QTwWwxWsKd2E7pic8

08/27/2026

Using the power of film to increase understanding of epilepsy and strengthen community connections.

What is it really like to live with epilepsy?

Brainstorm follows the stories of three people living with epilepsy: a broadcast journalist, a nationally recognized football coach, and a middle school student and his family.

Created by Emmy Award-winning journalist and epilepsy advocate Stacia Kalinoski, the film was born from a desire to educate, reduce stigma, and build empathy around the realities of living with epilepsy.

Join us for a special screening, an opportunity to meet Stacia Kalinoski in person, and a community conversation about epilepsy, awareness, and the experiences that too often go unseen.

📅 Thursday, September 3
🎉 Reception & Meet the filmmaker- 5:00 PM
⏰ Film Screening: 6:00 -7:30 PM
📍 Challenger Learning Center IMAX Theatre | Tallahassee
🎟️ Free with registration. Space is limited.

Swipe through to learn more about the film, then reserve your spot. We hope you’ll join us on September 3rd.

🔗 Click here to register: https://forms.gle/zMofRytdeCQ6Zu6C8

08/26/2026

British swimmer Imogen Clark refused to let epilepsy slow her down.

We first shared Imogen’s story in our July newsletter as a reminder that a diagnosis does not define a person’s abilities, ambitions, or future.

People with epilepsy are athletes. Students. Parents. Artists. Professionals. Friends. Advocates.

They are people with stories that deserve to be seen beyond their diagnosis.

That’s part of why we’re bringing our community together for Brainstorm: A Film Screening & Community Conversation About Epilepsy.

Through storytelling, education, and connection, we hope to create greater understanding and challenge the misconceptions that too often surround epilepsy.

Let’s change the conversation.

Join us September 3 at the Challenger Learning Center. Admission is free. Space is limited. Registration is required.

To register, click here >> https://forms.gle/ka2U6ceGTP3qBvSF6

England's Imogen Clark talks about how she manages her epilepsy and juggles her day job to self-fund her hopes of a medal at the Commonwealth Games.

08/25/2026

Meet the filmmaker behind Brainstorm. 🧠⚡️

Stacia Kalinoski is an Emmy Award–winning journalist, filmmaker, author, and epilepsy advocate whose own experience with epilepsy changed the course of her life and inspired her to tell the stories of others living with the condition.

On September 3, Stacia will join us at the Challenger Learning Center IMAX Theatre for our event Brainstorm: A Film Screening & Community Conversation About Epilepsy.

Come hear her story, watch Brainstorm, and be part of a conversation that helps build understanding, challenge stigma, and bring epilepsy into the light.

Thursday, September 3
Challenger Learning Center IMAX Theatre | Tallahassee
Reception & Meet the Filmmaker: 5:00 PM
Screening: 6:00 PM - 7:30PM

🎟️ This event is FREE, but registration is required.
🔗 Click here to register >> https://forms.gle/bVXSc5JdDx8nWrct6

Meet the filmmaker. Hear the story. Join the conversation.

08/19/2026

Remember this story?

In our June newsletter, we shared the story of Ellie, who has lived with epilepsy since she was 2 years old.

Her story wasn’t just about seizures. It was about the impact epilepsy can have on school, friendships, family, and activities she loves, and the hopes she has for her future.

Behind every diagnosis is a person with a story.

That’s why conversations about epilepsy matter. On September 3, EABB is bringing our community together for Brainstorm: A Film Screening & Community Conversation About Epilepsy.

Let’s talk about epilepsy differently.

Join us. Admission is free. Space is limited. Registration is required. To register, click here -> https://forms.gle/yfZHfVop7ra1LkMU6

Ellie has faced epilepsy since age 2, but through seizures, surgery and setbacks, she continues to pursue her dreams with resilience, hope and the support of her family.

08/12/2026

Earlier this year, we shared the story of musician Guy Stoker, who spoke openly about living with epilepsy and the stigma that came with it.

Epilepsy is more than seizures. It can affect how people are perceived, how comfortable they feel talking about their experiences, and how connected they feel to the people around them.

That’s why conversation matters. At Brainstorm: A Film Screening & Community Conversation About Epilepsy, we’ll bring people together through the power of film to challenge stigma and strengthen public understanding.

Join us September 3rd. Admission is free. Space is limited. Registration is required. To register, click this link --> https://forms.gle/yfZHfVop7ra1LkMU6

Guy Stoker has campaigned to support people, like him, living with epilepsy - but says dealing with the stigma can be tough.