Epilepsy Agency of the Big Bend

06/10/2026

The Epilepsy Agency of the Big Bend is proud to serve as a sponsoring organization of the National Plan for Epilepsy Campaign, a bipartisan effort to improve epilepsy research, access to care, public awareness, and quality of life for people living with epilepsy and their families.

Led by congressional epilepsy champions in both the U.S. House and Senate and supported by more than 120 epilepsy organizations nationwide, the campaign seeks to advance a comprehensive National Plan for Epilepsy and strengthen the nation's response to this common neurological condition.

Take action today and ask your members of Congress to Support the National Plan for Epilepsy Act.

🔗 Click the link below to take action

What is a National Plan for Epilepsy and What Would It Do? The Epilepsy Caucus Co-chairs, Senators Eric Schmitt (R-MO) & Amy Klobuchar (D-MN) and Representatives Jim Costa (D-CA-21) & Greg Murphy, MD...

06/02/2026

As temperatures continue to rise during the Florida summer, it’s important to understand how extreme heat can impact people living with epilepsy. Florida is located within America’s “Epilepsy Belt,” and research suggests that frequent exposure to temperatures above 95°F may increase seizure risk for some individuals.

This month’s newsletter features the article, “How Climate Change May Impact Genetic Conditions and Certain Types of Epilepsies,” which explores the impact of rising temperatures and climate abnormalities. To read the full article, click the link below!

At EABB, we believe education and awareness are essential parts of epilepsy care and safety. That’s why we offer a free monthly Zoom education series focused on seizure safety, trigger awareness, and daily living skills. Individuals with epilepsy, family members, friends, caregivers, and community members are all welcome to join to learn seizure first aid, identify potential triggers, and gain practical tools for everyday life. To join, please contact Gabriela Pineda at [email protected] or visit www.eabb.org.

And for more stories like this, stay up to date by signing up for our monthly newsletter at eabb.org.

Climate change may worsen symptoms of heat‑sensitive genetic variants, making some neurological and epileptic conditions more likely to appear or intensify during heatwaves. Researchers identify “calortypic” genes that raise hidden vulnerability.

06/01/2026

It’s Baseball Season! ⚾

Hat’s off to the Los Angeles Dodgers and Freddie Freeman for helping create an unforgettable moment for a teenager living with epilepsy.

Stories like this remind us how meaningful visibility, kindness, and support can be for people and families impacted by epilepsy. Small moments of encouragement and inclusion can leave a lasting impact and help individuals feel seen, supported and empowered.

This month’s newsletter featured the inspiring story of how Dodger’s first baseman Freddie Freeman helped grant a special wish for teen Kaylyn Alves, who had the opportunity to throw a ceremonial first pitch before the game. Click the link below to read more about her unforgettable experience.

At EABB, we are passionate about empowering teens and young adults living with epilepsy by helping them build confidence, connection, and community. To learn about our student program and how to get involved, please contact Gabriela Pineda at [email protected].

And for more stories like this, stay up to date by signing up for our monthly newsletter at eabb.org

The Los Angeles Dodgers star recently spent time with the Make-A-Wish teen prior to a game at Dodger Stadium.

05/19/2026

“Let me win. But if I cannot win, let me be brave in the attempt.”

That’s the Special Olympics Athlete Oath, and it clearly resonates with Panama City resident Rachael Riccobene, who competed this weekend in cycling at the Special Olympics Florida State Summer Games in Orlando.

Since connecting with EABB in 2019, Rachael has made remarkable strides in living well with epilepsy – growing in confidence, independence, and self-belief, ultimately feeling empowered to pursue competitive cycling through the Special Olympics.

This year, Rachael earned two silver medals, adding to an already extraordinary record that includes eight gold medals over five years of competition.

Her courage, consistency, heart, and perseverance continue to inspire everyone around her. Congratulations, Rachael. We couldn’t be more proud! 💛

05/18/2026

In April, we were honored to participate in the Florida Blue Foundation Community Health Symposium and Awards, joining more than 600 healthcare, public health, and community leaders from across Florida working to build healthier, more resilient communities.

The Epilepsy Agency of the Big Bend Executive Director Bette Iacino shared Building Resiliency: Addressing Poverty, Loneliness, and Chronic Illness in Public Health, exploring how these intersecting challenges shape health outcomes—and the vital role community-based organizations play in helping people build healthier, more stable lives. Watch the video below to learn more about the 2026 Community Health Symposium and Sapphire Awards!

Our sincere thanks to the Florida Blue Foundation for its leadership and enduring commitment to improving health and well-being across Florida. We were truly grateful to be part of such an important and inspiring gathering.

Florida Blue Foundation was proud to host the 2026 Community Health Symposium and Sapphire Awards to bring nonprofit organizations together to discuss and ce...

05/13/2026

Caregivers are often the quiet backbone of epilepsy care; providing support, advocacy, and comfort every single day. But while they care for others, their own emotional, physical, and mental well-being can sometimes be overlooked.

This article, "Caring for the Caregiver," highlights the very real challenges caregivers face and why greater recognition and support matter so much.

To read the full article, click the link below!

At EABB, we believe caregivers deserve support too. That’s why we offer a free monthly Caregiver Zoom Program where caregivers can connect, share experiences, and build resilience together. To join, please contact Gabriela Pineda at [email protected]

And for more stories like this, stay up to date by signing up for our monthly newsletter at eabb.org.

By Dr Usha M. Khanapur, CRTP Research Fellow (DBT/Wellcome Trust India Alliance–funded STOP-Epilepsy Clinical Research Centre) The George Institute for Global Health, India Dr Deepika Saluja Programme Manager – Ubuntu Initiative & Thought Leadership Advisor, Impact & Engagement,

05/07/2026

Thank you to the Tallahassee Senior Center for welcoming us for a Lunch & Learn on seizure first aid yesterday!

Our presentation on "Understanding Epilepsy and Aging", gave attendees the tools and confidence needed to respond safely and compassionately when witnessing a seizure.

Did you know? Epilepsy is the third most common neurological condition over 50. Older adults over 65 account for one-quarter of all first-time seizures, making seizure awareness and education especially important for seniors, caregivers, and community members.

Thank you to everyone who joined us and participated in such meaningful conversation!

If you, or your organization are interested in FREE seizure first aid training, please contact Gabriela Pineda at [email protected] to learn more about bringing a presentation to your community.

04/30/2026

Seizure First Aid with the Epilepsy Agency of the Big Bend
Wed., May 6, 12:00 noon

Learn how to respond when someone experiences a seizure. This session covers steps that help reduce fear, protect the individual, and support bystanders during a stressful moment. The presentation also includes an introduction to community CPR skills.

➡️ Register: https://www.tallahasseeseniorfoundation.org/health-wellness

04/20/2026

Last week, we were proud to participate in the Florida State University Public Health Professions Conference and connect with the next generation of public health leaders. It was a great opportunity to meet students, highlight our Student Epilepsy Network, and raise awareness of epilepsy and seizure first-aid.

Many thanks to FSU for the invitation and to everyone who stopped by our table. To learn more about our student program, please contact Gabriela Pineda at [email protected].

04/03/2026

A big shout out to our friends in the Bay County region! The Epilepsy Agency of the Big Bend is so grateful to Gulf Coast State College for the invitation to participate in their Community Service Awareness Day this week!

We're incredibly inspired by GCSC's commitment to being such a kind advocate for our work! We're so pleased to have the opportunity to reach so many students about the importance of seizure first-aid.

A special thank you to our amazing team members, Beverley Washington-Finch and Gabriela Pineda, for representing EABB and engaging with students throughout the event.

We loved meeting so many passionate individuals and look forward to continuing this important work together! 💛