Bleeding Disorders Foundation of North Carolina

09/14/2026

Reminder! Join HFA tomorrow at 7:00 p.m. ET for a free webinar with Rachel Madley, PhD, Executive Director of the Center for Health and Democracy and former health policy advisor to Congress and the FDA.

Together, you'll explore:

✔️ How Medicare is structured

✔️ Traditional Medicare vs. Medicare Advantage

✔️ How coverage choices can affect access to specialty care, prescription drugs, and out-of-network providers

✔️ Policy changes that could improve affordability, access, and continuity of care for people with bleeding disorders

Whether you're enrolled in Medicare, approaching eligibility, or helping a loved one navigate coverage, this webinar will provide practical, patient-centered information.

📅 September 15

🕖 7:00 p.m. ET

Register here: https://buff.ly/gI71QbU

09/08/2026

If you’re an adult ages 20–30 living with a bleeding disorder, this is your opportunity to connect with others, grow your leadership skills, and help shape the future of the bleeding disorders community.

There’s still time to join NEXT Leaders Congress! 🥳

If you’re an adult ages 20–30 living with a bleeding disorder, this is your opportunity to connect with others, grow your leadership skills, and help shape the future of the bleeding disorders community.

There is no cost to apply. Once accepted, Save One Life covers your flight, hotel stay, and food. Don’t miss your chance to be part of NEXT!

Apply today and take the next step in your leadership journey! https://docs.google.com/forms/d/e/1FAIpQLSecR88Dq1-MFixjiaQhhdB1yZwKj17FWlR8apa9onFknuuoZQ/viewform

09/07/2026

Every $25 = 1 ticket (ex. $75 = 3 tickets)
Are you feeling lucky? BDFNC is kicking off the Raleigh Family Festival & Walk with an awesome raffle! Anyone who donates or raises $25+ for the fundraiser by Sept 14 can opt in. Learn more here: https://ow.ly/aFXf50ZKmpj

09/05/2026

Big changes are coming to Medicaid in January, and you should be ready. Join a panel of public policy experts from the National Bleeding Disorders Foundation and the Artemis Policy Group to learn about the changes coming as a result of HR 1 (One Big Beautiful Bill Act), NBDF's efforts on the state and federal levels, and what community members need to do to prepare.

Register here: https://ow.ly/RIvz50ZJEaf

09/04/2026

NCDHHS is seeking patients, health care providers, researchers, and public health leaders interested in joining the NC Rare Disease Advisory Council.

This council advises the governor, NCDHHS and the General Assembly on research, diagnosis, treatment and education relating to rare diseases or conditions that affect fewer than 200,000 individuals nationwide. Approximately 95% of all rare diseases do not have an FDA approved drug treatment or cure.

Originally established in 2015, the NC Rare Disease Advisory Council was the first of its kind in the nation. The council was transferred to NCDHHS and reorganized by the NC General Assembly in 2026.

NCDHHS will be appointing 15 individuals who represent established membership categories to serve on the council beginning in 2027. Interested individuals are encouraged to submit a council interest form by Sept. 8.

The North Carolina Department of Health and Human Services is seeking interested residents to join the NC Rare Disease Advisory Council. This Council advises the Governor, NCDHHS and the General Assembly on research, diagnosis, treatment and education relating to rare diseases or conditions.

NCDHHS will be appointing 15 individuals who represent established membership categories to serve on the Council beginning in 2027. Interested individuals are encouraged to submit a Council interest form by Sept. 8, 2026.

Interest form: https://ow.ly/A9Bb50ZGB1L
More information: https://ow.ly/WyiJ50ZGB1N

09/04/2026

Love the upgrade! 💫

09/03/2026

Medicare can be complicated, but understanding your coverage doesn't have to be.

Join HFA on September 15 at 7:00 p.m. ET for a free webinar with Rachel Madley, PhD, Executive Director of the Center for Health and Democracy and former health policy advisor to Congress and the FDA.

Together, we'll explore:

✔️ How Medicare is structured

✔️ Traditional Medicare vs. Medicare Advantage

✔️ How coverage choices can affect access to specialty care, prescription drugs, and out-of-network providers

✔️ Policy changes that could improve affordability, access, and continuity of care for people with bleeding disorders

Whether you're enrolled in Medicare, approaching eligibility, or helping a loved one navigate coverage, this webinar will provide practical, patient-centered information.

📅 September 15

🕖 7:00 p.m. ET

Register here: https://buff.ly/gI71QbU