Texas Fragile X Association

Texas Fragile X Association Fragile X Syndrome The Texas Fragile X Association provides resources and education to those seeking guidance on Fragile X issues.

Because our members understand the everyday challenges of providing for children and adults affected by Fragile X Syndrome we are able to educate our local communities while our families strive to further the understanding of Fragile X by participating in various carrier and effected studies.

A REMINDER. THIS SATURDAY. FREE.
07/28/2026

A REMINDER. THIS SATURDAY. FREE.

07/23/2026
07/22/2026

San Antonio having a light up!

Alamo Quarry Smokestacks

255 E Basse Rd, San Antonio, TX, USA

The Alamo Quarry Smokestacks will light up teal Monday, July 20th thru Thursday, July 23rd in honor of World Fragile X Day, to raise awareness for Fragile X syndrome.

San Antonio, TX, USA

07/22/2026

Facts today: we're half way through July! What's the most interesting thing you've learned so far?

07/22/2026

THIS IS AWESOME. THANK YOU TO WHO GOT THIS DONE. There may be more lighting in Texas.

Millennium Fountain at Millennium Park

201 North Sowers Road, Irving, TX, USA

The Millennium Fountain at Millennium Park will light up teal on July 22, World Fragile X Day, to raise awareness for Fragile X syndrome.

Irving, TX, USA

07/22/2026

Copied from one of our members. Awesome post Breea Smith .
Today is World ๐ŸŒŽ Fragile X Day!! ๐Ÿ’š๐Ÿ’™We just came back from attending NFXF International Fragile X Conference where we met industry professionals, experts, clinicians, and other families affected by Fragile X Syndrome. We laughed, we cried, we learned, we danced but more importantly we celebrated our sons and others like them that make the world a better place.
Whether you have Fragile X Syndrome or not, acceptance, inclusion, and belonging are what every human being deserves. ๐Ÿ’™๐Ÿ’š

Today, on World Fragile X Day, I challenge you to look beyond differences and choose kindness. A smile, an invitation, a conversation, or simply taking the time to understand someoneโ€™s unique needs can change a life.

But the greatest impact starts at home.

How will you model acceptance today? More importantly, how will you teach your children that every person has value, deserves respect, and belongs?

Awareness is only the first step. Action creates inclusion. Letโ€™s build communities where differences are celebrated, friendships are encouraged, and no one feels left out.๐Ÿ’š

๐Ÿ’™ Share this post to help spread awareness about Fragile X syndrome and commit to one act of inclusion today. Together, we can create a world where everyone belongs.

Different, not less. Everyone deserves to be seen, valued, and included. FragileXStrong

07/22/2026

Happy Fragile X Awareness Day Everyone From Texas Fragile X Association!

07/13/2026

Absolutely beneficial for our Fragiles

Our Applied Behavior Analysis (ABA) team discusses de-escalating problem behaviors: What are they? What are the early warning signs? How can you help prevent challenging behaviors before they reach a crisis point?
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De-Escalating Problem Behaviors
De-Escalating Problem Behaviors


Today, we're going to discuss an important topic that every caregiver, therapist, educator, and family member should understand: de-escalating problem behaviors. We'll talk about what de-escalation means, the stages of behavior that lead up to challenging behaviors, and how even small environmental factors can become triggers for a learner without us realizing it. When we hear the phrase "de-escalating problem behaviors," we're referring to the process of reducing the intensity of a situation before it reaches a crisis point.

The ultimate goal of de-escalation is to replace panic, aggression, and unsafe behaviors with safety, regulation, and support. Rather than focusing solely on what to do during a meltdown, effective de-escalation requires us to recognize the warning signs that occur long before a learner reaches that point.

To better understand this process, we first need to review the five stages of behavior: Calm, Trigger, Agitation, Acceleration, and Peak. These stages help us identify where a learner is emotionally and behaviorally so we can intervene appropriately.

Calm Stage
Sometimes referred to as baseline behavior. This is when a learner is regulated, comfortable, and engaged. Imagine a learner playing outside on a playground. They are running around, smiling, interacting with their preferred items, and enjoying themselves.

At this moment, they are calm and content. However, environments can change quickly. Let's say several other peers come outside to play. Some of those peers begin screaming, crying, or engaging in disruptive behaviors. While this may not seem significant to everyone, it could be highly distressing for a learner who is sensitive to loud noises or unexpected changes.

This environmental change becomes a Trigger.

Trigger Stage
A trigger can be anything that causes discomfort, frustration, anxiety, or sensory overload. Sometimes triggers are obvious, such as loud noises or denied access to a preferred activity. Other times they are subtle, such as a change in routine, an unfamiliar person entering the room, a difficult task, or even a therapist's tone of voice.

Understanding a learner's unique triggers is one of the most important aspects of behavior support. After a trigger occurs, the learner may move into the Agitation stage.

Agitation Stage
During this phase, we begin to see signs that the learner is becoming dysregulated. They may engage in increased self-stimulatory behavior, pace back and forth, avoid eye contact, become quieter than usual, or display physical signs of tension. Their body may become stiff, their breathing may change, or their hands may begin to clench into fists.

This stage presents a critical opportunity for intervention. Rather than waiting for the behavior to intensify, we should identify the trigger and respond proactively. If possible, remove or reduce the trigger. This could involve moving to a quieter area, providing noise-canceling headphones, offering a preferred item, or introducing a calming activity or fidget.

The goal is to help the learner regain regulation before the situation escalates further. Equally important during this stage is self-awareness. As caregivers and professionals, we must monitor our own behavior. Our body language, facial expressions, and tone of voice can either help calm a situation or unintentionally make it worse. If we appear frustrated, tense, demanding, or confrontational, the learner may become even more distressed.

A calm learner benefits from a calm support person. Additionally, be mindful of the language you use. For some learners, hearing the word "no" can be highly triggering. While setting limits is sometimes necessary, consider using alternative phrases when appropriate. Instead of saying, "No, you can't have that," you might say, "Not right now," "In a few minutes," or "Let's finish this first and then we'll do that." These alternatives can communicate expectations while reducing the likelihood of escalation.

If the learner continues to become upset despite intervention, they may enter the Acceleration stage.

Acceleration Stage
During acceleration, emotions are building rapidly. The learner may begin yelling, crying, dropping to the floor, attempting to leave the area, refusing demands, or displaying other challenging behaviors. At this point, reasoning, lecturing, or trying to have a lengthy conversation is often ineffective.

The primary objective during acceleration is safety and prevention of further escalation. Focus on reducing demands, limiting environmental stressors, and guiding the learner toward a calmer setting if possible. Keep communication brief, simple, and supportive. Remember that a learner who is highly emotional is often not in a position to process complex instructions or explanations. If the behavior continues to intensify, the learner may reach the Peak stage, commonly referred to as a meltdown or crisis phase.

During this stage, they may engage in behaviors such as aggression, self-injurious behavior (SIB), head hitting, property destruction, elopement, intense crying, or other unsafe actions. When a learner reaches this point, safety becomes the number one priority. Continue maintaining calm body language and a calm tone of voice. Avoid arguing, threatening consequences, or overwhelming the learner with excessive verbal prompts. Give appropriate space when safe to do so, and ensure the environment is as safe as possible.

Depending on the learner's individualized support plan, you may guide them toward coping strategies that have been taught previously. These might include deep breathing exercises, counting from one to ten, using sensory tools, listening to calming music, squeezing a stress ball, or engaging in other self-regulation techniques.

However, it is important to remember that not every learner can access coping skills during the peak of a crisis. Sometimes the most effective intervention is simply remaining calm, ensuring safety, and allowing the learner time to regain control.

Conclusion
One of the most important lessons about de-escalation is that success often occurs before the meltdown ever happens. By recognizing triggers early, responding during the agitation phase, monitoring our own behavior, and creating supportive environments, we can often prevent challenging behaviors from reaching the acceleration or peak stages.

Ultimately, de-escalation is not about controlling a learner. It is about understanding what they are communicating through their behavior and providing the support they need to feel safe, regulated, and successful. When we learn to recognize the warning signs and respond with empathy, patience, and consistency, we create opportunities for meaningful growth and positive outcomes for both learners and their families
Copied from Kate Lundren
Cutting Edge Pediatric Therapy

07/10/2026

ANYONE WHO HAS A SPECIAL NEEDS CHILD/ADULT WHO DOESN'T HAVE GUARDIANSHIP AND/OR BENEFITS THIS IS A TERRIFIC GROUP SESSION.

Don't forget to register! This session was created specifically for families like yours.

If you're trying to better understand SSI, Social Security, Medicaid, waiver programs, or the recent changes affecting benefits, this is one of the most valuable educational sessions we offer.

Join TJ for a live Zoom Group Session where he'll explain these complex topics in a way that's practical, easy to understand, and directly applicable to your family's planning.

Upcoming SSI/SSA Group Session

๐Ÿ“… Thursday, July 23
๐Ÿ•• 6:00โ€“8:00 PM (Central)
๐Ÿ’ป Live via Zoom

During this session, you'll learn about:

SSI, Social Security, and recent system changes
Medicaid and Medicare
How to successfully navigate the SSI and Social Security systems
Texas waiver programs, including:
Home & Community-Based Services (HCS)
Community Living Assistance and Support Services (CLASS)
STAR+PLUS Waiver (formerly CBA)
This session includes the same educational content covered during our private one-on-one meetingsโ€”but in a group setting at a significantly reduced cost.

Registration: $175 per family

You'll also have the opportunity to ask general questions during the live session and learn alongside other families who are navigating many of the same challenges.

Seats are limited, so don't wait! Simply reply to this email if you'd like to reserve your spot, and we'll take care of the registration for you.

We look forward to seeing you there!


Lauren Burton
Program Director

Hi Families,There's still time to register for our upcoming SSI/SSA Group Session! If you've been wanting to better unde...
07/08/2026

Hi Families,

There's still time to register for our upcoming SSI/SSA Group Session! If you've been wanting to better understand SSI, Social Security, Medicaid, waiver programs, and recent system changes, this is a great opportunity to receive comprehensive guidance from TJ in a convenient Zoom format.

Upcoming Session Details

Thursday, July 23
6:00โ€“8:00 PM Central
Via Zoom

During this session, TJ will cover:

SSI, Social Security, and recent system changes
Medicaid and Medicare
Working within the SSI and Social Security systems
Waiver programs and updates, including:
Home & Community-Based Services (HCS)
Community Living Assistance and Support Services (CLASS)
Community Based Alternatives (CBA), now known as the STAR+PLUS Waiver
This group session includes the same valuable information provided during our one-on-one meetings, but at a reduced cost:

Group Session Registration: $175

In addition to the presentation, you'll have the opportunity to ask general questions during the live Zoom session and learn alongside other families navigating similar situations.

If you'd like to reserve your spot, simply reply to this email and we'll get you registered. If you have any questions, we're happy to help.



Lauren Burton
Program Director

[email protected]
www.txlifeplanning.com
www.forfamiliesofspecialneeds.com

972-964-3444 ext. 127 Direct
972-964-3443 Fax
3939 Belt Line Road
Suite 310
Addison, Texas 75001

Your good will goes a long way. As we continue to build our practice, we would appreciate your favorable introductions to friends, neighbors and co-workers. We also invite you to tell your friends about our website by clicking the link provided.

Information contained in this message is privileged and confidential information intended for the use of the individual or entity named above. If the reader of this message is not the intended recipient, you are hereby notified that any dissemination, distribution, or copy of this transmission is strictly prohibited. If you have received this transmission in error, please notify us immediately by phone and return to the above referenced address via the US Postal Service.

For Families of Special Needs, Inc is not affiliated with Special Needs Family, LLC or TXLP, DBA Life Planning for Families of Special Needs, Inc.

For Families of Special Needs, Inc. is an organization dedicated to assisting persons with disabilities, their advocates, caregivers and families with long range care planning.

The content is developed from sources believed to be providing accurate information. The information in this material is not intended as tax or legal advice. Please consult legal or tax professionals for specific information regarding your individual situation. Some of this material was developed an...

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DFW Area
Dallas, TX
75287

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