The Neuroblastoma Children's Cancer Society

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The Neuroblastoma Children's Cancer Society

The Neuroblastoma Children's Cancer Society is a group made up of volunteers, many of whom have children or relatives who are victims or survivors of NB.

09/30/2025

CHILDHOOD CANCER AWARENESS MONTH :

Inspiration and Advice: On this final day of September and Childhood Cancer Awareness Month, I wanted to share some words of inspiration and advice for childhood cancer patients, survivors, and their families

09/26/2025

**Warning: This post could be triggering, but during this month, it is important to discuss the children that we lose to childhood cancer. We do have bereaved families following this page, and I am sure that many of you have encountered bereaved families. I have also found that this post is incredibly powerful to those outside of our community, as well.

CHILDHOOD CANCER AWARENESS MONTH :

There is nothing that is more difficult than the death of a child, and 1 out of every 5 children diagnosed with cancer in the United States dies within 5 years of their diagnosis. "...Any parent who has lost a child knows that time does not heal all wounds, and grief over the loss of a child to childhood cancer cannot and should not simply be swept under the rug or ignored until it passes...The lives of children who have lost their battle with childhood cancer should be celebrated.

Grieving parents and grieving families should be invited to share their grief openly, because while grieving for a lost child never ends, knowing that you are not alone, knowing that you can talk about your child and his or her fight, his or her beauty and strength, can make it just a little bit easier to cope with the difficult task of living" (American Childhood Cancer Organization).

This post contains a few websites that offer resources to bereaved parents, and the pictures on this post offer just a glimpse into the pain that parents and the entire family can feel after the loss of a child. Please be there for these families, and talk to them about wonderful memories that you have of their child. Spread awareness, and fundraise or donate to childhood cancer research!

https://www.cclg.org.uk/about-cancer/my-child-and-cancer/my-child-cannot-be-cured/facing-death-your-child-and-bereavement

09/24/2025

CHILDHOOD CANCER AWARENESS MONTH:

Behind The Neuroblastoma Children’s Cancer Society

Michael James Sexton’s courageous effort in his fight against neuroblastoma cancer ended September 24, 1993 at the age of three. During his nine months of intense treatment, he faced each day with determination, purpose and his smile!

“We were shocked by the inability of the medical profession to combat the disease and that no major organization was funding significant research to promote a frontline treatment or cure for neuroblastoma cancer.” – Founders of NCCS and parents of Michael.

Founded in 1994, the Neuroblastoma Children’s Cancer Society is a 501(c)(3) nonprofit organization dedicated to promoting research and providing support to the children (and their families) diagnosed with neuroblastoma.

Our organization is dedicated to raising funds for neuroblastoma research, to change the outcome for all children diagnosed with this disease.

09/19/2025

CHILDHOOD CANCER AWARENESS MONTH:

Childhood Cancer can be financially devastating for a family. Even if there is health insurance, the out-of-pocket percentage can be astronomical throughout years of treatments. Furthermore, one parent typically has to leave their job to take care of their child at home and in the hospital. Some families lose their houses and cars, and others have to file bankruptcy just to keep their child alive and in treatment. At times, hospitals and nonprofit organizations are able to assist with some of the financial burdens, but there are not enough funds to cover everyone and everything.

If you are interested in searching many different nonprofit organizations that offer various types of financial assistance, all in one place with one easy search, check out the Hope Portal

https://hopeportal.anddit.com/

09/18/2025

CHILDHOOD CANCER AWARENESS MONTH

TREATMENT:

"In the 1950s, a cancer diagnosis was a death sentence for a child. Today, it’s a life sentence. It often involves years of painful treatment. There is no easy way to rid a child of cancer. Surgery, chemotherapy, radiation, immunotherapy — all of it is hard, some of it is lethal, and most of it leaves scars...
..Today, forty-four children in the United States will have their ticket called. These kids will be ripped from childhood and brought into the brutal world of cancer treatment.

Tomorrow, forty-four children in the United States will have their ticket called..." ("Forty-Four and Other Brutal Numbers Associated with Childhood Cancer" by Jacqueline Dooley).

Childhood cancer treatments are absolutely brutal - they are used to kill cancer cells, but in the process, healthy cells are destroyed, as well. Furthermore, children are continuously growing, and cancer treatments complicates this, too, leaving a lifetime of medical conditions for survivors. More funding is needed to conduct research and find better, less toxic treatments.

09/15/2025

CHILDHOOD CANCER AWARENESS MONTH:

Today's post explains the various types of childhood and adolescent cancers, blood cancers, tumors, and cancer cells.

09/12/2025

CHILDHOOD CANCER AWARENESS MONTH

SURVIVORSHIP

There are more than 500,000 childhood cancer survivors in the United States in 2025. Survivors may be living longer lives, but many have medical conditions or late effects from their cancers and treatments. These late effects can range from moderate to severe health conditions, and some survivors have one or two late effects, while others have many late effects. Childhood cancer may occur during childhood, but the effects of it last a lifetime! Thus, we need additional research to find less toxic treatments so that we can strive to provide a better quality of life for childhood cancer survivors!

"We have to change the dialogue and restore a sense of urgency with these children. Cancer is still the number one disease killer of children...and the burden of survival for our children is far too great." - Dr. Peter Adams, M.D., Former Chair of the Children's Oncology Group

09/10/2025

CHILDHOOD CANCER AWARENESS MONTH: Inspiration and Advice

Some words of inspiration and advice for childhood cancer patients, survivors, and their families. ❤️

09/08/2025

CHILDHOOD CANCER AWARENESS MONTH

SCANXIETY:

Scanxiety is a common term used among cancer patients that are post-treatment, survivors, and childhood cancer parents and caregivers. Scanxiety is experienced when someone is first diagnosed, or it is felt when waiting to see if the treatments have impacted the cancer, and it can even be felt throughout a lifetime of survivorship. The diagnostics tests that are needed to do these things include x-rays, MRI, CAT scan, blood work, and many others, and WebMD says that scanxiety is a term "used to describe the nervousness around the time of these tests."

Scanxiety also includes anxiety, worry, fear, and feeling upset and tense. This term is unknown to some, but childhood cancer patients, survivors, and their families deal with scanxiety throughout life.

The website below contain a few tips and ideas for dealing with and managing scanxiety:

https://curechildhoodcancer.org/blog/managing-scanxiety

09/05/2025

CHILDHOOD CANCER AWARENESS MONTH

09/04/2025

CHILDHOOD CANCER AWARENESS MONTH

What can you do to bring awareness and support for children with cancer during the month of September?
Wear gold, which can bring awareness and spark conversations about childhood cancer. You can also donate to reputable nonprofit organizations that fund childhood cancer research.

Childhood cancer research is vastly and consistently underfunded, so private organizations and nonprofits must raise money to fill these unjust funding gaps! (If you want to donate toward neuroblastoma research, The Neuroblastoma Children's Cancer Society gives the majority of donations to research! We are an all-volunteer organization, and typically have low expenses so that we can use the money where it is so desperately needed.

Check us out on our WEBSITE, funded in part by a grant, at https://neuroblastomachildrenscancersociety.org . If you are cash-strapped, however, then try some of the other ideas below and spark some awareness!!

09/03/2025

September is Childhood Cancer Awareness Month and gold is the official color of the childhood cancer awareness ribbon!

"Each year, approximately 400,000 children and adolescents of 0-19 years old are diagnosed with cancer. The most common types of childhood cancers include leukemias, brain cancers, lymphomas and solid tumors, such as neuroblastoma and Wilms tumors. In high-income countries, where comprehensive services are generally accessible, more than 80% of children with cancer are cured. In low- and middle-income countries (LMICs), an estimated 15-45% are cured."

https://www.who.int/news-room/fact-sheets/detail/cancer-in-children

Address

Hoffman Estates, IL
60195

Website

http://neuroblastomacancer.org/

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