05/28/2026
Celebrating Quinn Kougl: A Legacy of Love on Treacher Collins Awareness Day
Today, we honor Treacher Collins Awareness Day by celebrating the vibrant, unforgettable life of Quinn Kougl.
For many children diagnosed with Treacher Collins Syndrome, the reality often involves institutional care far away from family. But for the Kougls, separating their daughter from the warmth of home was never an option. Justine & William knew that Quinn belonged on the family cattle ranch in rural Big Horn County, growing up side-by-side with her two siblings. From day one, they chose to fight fiercely to keep their family whole.
Because of their unwavering dedication, two-year-old Quinn got to experience the ultimate freedom of ranch life—wearing her tiny chaps, exploring the outdoors, and living every day surrounded by unconditional love.
Keeping a medically fragile child at home while running a demanding cattle operation and raising young kids is an extraordinary challenge. The Kougls regularly navigated a relentless schedule of medical travel to specialists in Sheridan, Billings, and Denver. At the same time, they tackled the daunting bureaucracy of state Medicaid programs. When system shifts threatened to cut off the vital speech, feeding, and nutritional therapies Quinn needs to thrive at home, Justine and William refused to back down. They stood as her ultimate protectors, advocating fiercely for her right to a full life at home.
On this journey, community organizations played a supporting role, offering guidance and helping the family protect Quinn's access to the Big Sky Waiver for Medically Fragile Children. As Justine beautifully shares:
“We had an incredible network of resources backing us up. From finding critical information to helping us secure specialized equipment that insurance won't cover, having advocates in our corner gives us the strength to keep fighting for Quinn's rights.”
In Loving Memory: We are deeply grateful to the Kougl family for allowing us to share a glimpse into their beautiful world. While we look back on Quinn's journey with immense pride, we also carry a profound sadness. Quinn passed away at the age of three on December 17, 2017. Today, and every day, our hearts and thoughts remain with the Kougl family and everyone who continues to love and miss this sweet girl. To learn more about TCS, visit: https://ccakids.org/treacher-collins-syndrome.html