National Ataxia Foundation

06/05/2026

CONFIRMED: St. Louis Walk N' Roll is back! Join us at Kirkwood Park at 9:30am on September 5th for a fun morning of awareness and impact.

Learn more at www.ataxia.org/WalkSTL

06/04/2026

The EveryLife Foundation for Rare Diseases is inviting families to apply for travel stipends to attend Rare Family Day 2026 on October 3.

Learn more and apply: https://22731230.hs-sites.com/rare-family-day-2026-travel-stipends-now-open

06/03/2026

Relationships are an important part of life - and having a disability doesn’t change that.

In this recorded webinar, Kathy O’Connell, LMHC, CRC, explores the unique challenges people with disabilities may face in dating and relationships, while sharing practical strategies for building and maintaining healthy, fulfilling romantic connections.

Watch now:

We continue to offer new webinars to support members with Ataxia, their loved ones, and service providers. We are pleased to invite Kathy O’Connell as a webi...

06/03/2026

Join us next week for a webinar on Toxic Exposure Ataxia.

Learn about the causes and symptoms of Toxic Exposure Ataxia, the diagnostic journey, clinical care, and the latest updates in research and drug development.

Don’t miss this opportunity to learn from experts and stay informed about progress in the field. Register today! http://bit.ly/4eBsEod

06/02/2026

Have some questions about Ataxia that you've been wanting to ask? Join us later this month as Dr. Susan Perlman helps us learn more about Ataxia.

Register: https://bit.ly/4dzfhE3

06/02/2026

Simple adjustments to everyday routines can sometimes make activities more comfortable and manageable. Our community continues to share practical ideas that may help others navigate daily life with Ataxia.

Have a tip to share? Submit it at ataxia.org/tips

06/01/2026

What does it mean to care for someone living with Ataxia?

Community member Ben shares his experience caring for his wife, Lauren, through her 11-year journey with Spinocerebellar Ataxia Type 7 (SCA7). He reflects on the challenges, lessons, and love that shaped their family's experience while offering insights that may help others on a similar path.

By sharing stories like Lauren's, we can raise awareness, foster understanding, and help families feel less alone. Read Ben & Lauren’s story: https://www.ataxia.org/ben-williamson/

06/01/2026

Summer is here...and so is your chance to make twice the impact!

Thanks to the Clementz-Peterson Family Fund and a generous donor, every gift made during our Summer Match Challenge will be matched dollar for dollar, up to $100,000, throughout the month of June.

Donate now at www.ataxia.org/summer

06/01/2026

PTC Therapeutics recently shared an update on vatiquinone, its investigational therapy for Friedreich's Ataxia (FA). They announced that they are initiating a new clinical trial for individuals living with FA from 7 to 21 years of age. They expect the study to begin enrolling in third quarter of 2026.

Learn more at www.ataxia.org/pharmanews

05/30/2026

Join our upcoming Cooking with Troy session next week! On the menu: Vietnamese Grilled Chicken.

Register: https://bit.ly/4fuHddN