National Ataxia Foundation

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National Ataxia Foundation Our Vision: A World Without Ataxia. https://www.ataxia.org/about-naf/

Congratulations to Eunice Cosentino our Support Group Leader for helping secure an official Ataxia Awareness Day procla...
05/09/2026

Congratulations to Eunice Cosentino our Support Group Leader for helping secure an official Ataxia Awareness Day proclamation in South Carolina!

Thanks to her dedication and advocacy, September 25 will be recognized as Ataxia Awareness Day across the state, helping raise awareness and shine a light on the Ataxia community.

Thank you, Eunice, for making a difference and helping our voices be heard!

04/09/2026

Our Xtreme Hike 2026 team is getting
ready for an incredible journey in support of the
National Ataxia Foundation!

Hear directly from this year's hikers about why they've
taken on this challenge and what motivates them to
make every step count!

Federal research funding helps drive progress toward treatments and cures for Ataxia. We want to make sure that research...
03/09/2026

Federal research funding helps drive progress toward treatments and cures for Ataxia. We want to make sure that research continues to be guided by science.

On September 23, Ataxia advocates will ask Congress to block a proposed OMB rule that could significantly change how federal grants are awarded and managed, including grants that support medical research.

It’s one of the ways our community will speak up for the future of Ataxia research during United Against Ataxia Hill Day.

Supporting your speech can be fun, too! Singing along to your favorite music is an enjoyable way to exercise your voice ...
01/09/2026

Supporting your speech can be fun, too! Singing along to your favorite music is an enjoyable way to exercise your voice and make it part of your daily routine.

Have a tip to share? Submit it at ataxia.org/tips

🚨 Last call for Hill Day! Registration closes TODAY - August 31st.Join the Ataxia community virtually on September 23 fo...
31/08/2026

🚨 Last call for Hill Day! Registration closes TODAY - August 31st.

Join the Ataxia community virtually on September 23 for United Against Ataxia Hill Day. You’ll meet with lawmakers, share your story, and advocate for policies that support Ataxia research and our community.

No advocacy experience is needed. We’ll provide the training and schedule your meetings.

Register now at www.ataxia.org/HillDay

Sometimes the right tool can make it easier to stay on the move while keeping your hands free for what matters most...yo...
25/08/2026

Sometimes the right tool can make it easier to stay on the move while keeping your hands free for what matters most...your balance and mobility.

Have a tip to share? Submit it at ataxia.org/tips

From measuring safety and symptom changes to identifying early signs that a treatment may be working, endpoints play an ...
21/08/2026

From measuring safety and symptom changes to identifying early signs that a treatment may be working, endpoints play an important role in determining whether a clinical trial is successful.

In this week's SCAsource, learn about the different types of clinical trial endpoints, how researchers choose them, and why they matter for advancing Ataxia treatments.

Read More: www.ataxia.org/scasourceposts/snapshot-what-is-an-endpoint

Planning for the future? Learn how ABLE accounts and special needs trusts can help protect financial resources and suppo...
21/08/2026

Planning for the future? Learn how ABLE accounts and special needs trusts can help protect financial resources and support long-term quality of life for people with disabilities.

This webinar is especially relevant for those whose disease onset occurred before age 46, as well as their families and caregivers.

Register now: https://us02web.zoom.us/webinar/register/WN_sfnmr7F9QvmL0ERXGlB6AA #/registration

📣 Registration for United Against Ataxia Hill Day ends soon. We're looking for more volunteers to join us online!On Sept...
20/08/2026

📣 Registration for United Against Ataxia Hill Day ends soon. We're looking for more volunteers to join us online!

On September 23, the Ataxia community will come together virtually to meet with lawmakers, share our stories, and advocate for policies that support Ataxia research and our community.

No experience is needed. We’ll provide training and schedule your meetings.

Make your voice heard. Register by August 31st at www.ataxia.org/HillDay

IntraBio Inc has announced a Phase III trial for N-acetyl-L-leucine for CACNA1A-related disorders, including Spinocerebe...
20/08/2026

IntraBio Inc has announced a Phase III trial for N-acetyl-L-leucine for CACNA1A-related disorders, including Spinocerebellar Ataxia Type 6 and Episodic Ataxia Type 2. The trial is being conducted at multinational sites in Austria, Germany, Greece, Italy, Switzerland, the United Kingdom, and the United States. The study is not yet recruiting participants. Participant enrollment will focus on recruiting participants who are already patients at the clinics selected as trial locations.

Read More: www.ataxia.org/pharma

Address

PO Box 27986

55427

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

+17635530020

Website

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