National Ataxia Foundation

National Ataxia Foundation Our Vision: A World Without Ataxia. https://www.ataxia.org/about-naf/

What is Spastic Ataxia?Join us for a webinar covering the causes, symptoms, diagnosis, and clinical care of Spastic Atax...
06/19/2026

What is Spastic Ataxia?

Join us for a webinar covering the causes, symptoms, diagnosis, and clinical care of Spastic Ataxia, along with the latest updates in research and treatment development.

Register today: https://bit.ly/4ezgL0a

Denver Walk N' Roll is only 1 month away! If you're in the area, join at Sloan's Lake Park at 10AM for a day of awarenes...
06/18/2026

Denver Walk N' Roll is only 1 month away! If you're in the area, join at Sloan's Lake Park at 10AM for a day of awareness, community, and supporting families affected by Ataxia!

Learn more at www.ataxia.org/WalkDenver

Lexeo Therapeutics is initiating the next phase of their Friedreich Ataxia gene therapy clinical trial! SUNRISE-FA 2 wil...
06/17/2026

Lexeo Therapeutics is initiating the next phase of their Friedreich Ataxia gene therapy clinical trial! SUNRISE-FA 2 will be open to individuals living with Friedrich Ataxia and heart muscle disease (cardiomyopathy). Stay informed - join the early notification list for upcoming SUNRISE-FA 2 updates and details on our website: https://www.ataxia.org/pharmanews/

For much of his life, Jorge Alonso knew something wasn't quite right, but it wasn't until 2021 that he received an Ataxi...
06/17/2026

For much of his life, Jorge Alonso knew something wasn't quite right, but it wasn't until 2021 that he received an Ataxia diagnosis. He shares his journey from noticing symptoms while playing sports to finding strength through aquatic therapy, family, and perseverance.

Read Jorge's story: www.ataxia.org/jorge-alonso

Congratulations to Michigan Walk N' Roll! They came out for a day of awareness and community. As the cherry on top, they...
06/16/2026

Congratulations to Michigan Walk N' Roll! They came out for a day of awareness and community. As the cherry on top, they also raised more than $10,000! Over 200% of their goal!

Thank you to everyone who participated and to our volunteer organizers who generously donate their time and talents to bring these events to their community!

www.ataxia.org/WalkMI

Comfort and accessibility can go hand in hand. Sometimes a simple change to your environment can make everyday activitie...
06/16/2026

Comfort and accessibility can go hand in hand. Sometimes a simple change to your environment can make everyday activities feel a little easier and require less effort.

Have a tip to share? Submit it at ataxia.org/tips

Research doesn't move forward because of one donation.It moves forward because hundreds of people decide that their gift...
06/15/2026

Research doesn't move forward because of one donation.

It moves forward because hundreds of people decide that their gift matters.

This month, every donation to NAF will be matched dollar for dollar, up to $100,000. Whether you can give $10, $25, $50, or more, your gift will go twice as far to support research, resources, advocacy, and support for the Ataxia community.

Small gifts add up. Double your impact today: www.ataxia.org/summer

Looking for a gentle way to improve mobility, flexibility, and body awareness while living with Ataxia?Our next Chair Yo...
06/15/2026

Looking for a gentle way to improve mobility, flexibility, and body awareness while living with Ataxia?

Our next Chair Yoga and Mobility for Ataxia session is July 9 at 12 PM CT. This webinar will explore accessible yoga and movement techniques that can be adapted to a variety of abilities.

Register now: https://bit.ly/43qDoio

Behind every advance in Ataxia research are scientists working to unlock new discoveries and potential treatments. In ou...
06/14/2026

Behind every advance in Ataxia research are scientists working to unlock new discoveries and potential treatments.

In our latest Faces of Ataxia Research feature, meet Maria do Carmo Costa, PhD, whose work focuses on understanding the mechanisms of SCA3 and other polyglutamine diseases to help identify potential therapeutic targets.

Learn more about Dr. Costa, her research, and what inspires her work: https://www.ataxia.org/faces-of-ataxia-research-maria-do-carmo-costa-phd/

Check out the first-ever Pedal for Progress in Seattle! The rainy forecast didn't stop the riders from having a great da...
06/14/2026

Check out the first-ever Pedal for Progress in Seattle! The rainy forecast didn't stop the riders from having a great day and enjoying an adaptive bike ride together.

Fundraisers for the event raised more than $6,000 to support our mission of accelerating treatment and improving the lives of people living with Ataxia.

Thank you participants, donors, and organizers!

Address

PO Box 27986
Golden Valley, MN
55427

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+17635530020

Website

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