Fanconi Cancer Foundation

Fanconi Cancer Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Fanconi Cancer Foundation, 360 E. 10th Avenue, Suite 201, Eugene, OR.

Our mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community. ➡️ www.fanconi.org

09/04/2026

What happens after an EL-PFDD meeting?

The experiences shared become part of a Voice of the Patient report, a public resource that can help the FDA, researchers and drug developers better understand the daily impact of Fanconi anemia, unmet needs and the outcomes that matter most to the community.

Register to attend the virtual meeting and learn how to share your story on our PFDD webpage: fanconi.org/pfdd

One month to go!On Oct. 3, the Fanconi anemia community will come together for an Externally Led Patient-Focused Drug De...
09/03/2026

One month to go!

On Oct. 3, the Fanconi anemia community will come together for an Externally Led Patient-Focused Drug Development meeting, also known as an EL-PFDD meeting.

This is a structured opportunity for people with FA, caregivers and family members to share what it’s really like to live with FA, including the symptoms and challenges that affect daily life, experiences with current treatments and what they need most from future options.

A recent FDA report highlighted the need for more systematic input from people affected by rare diseases and a better understanding of the outcomes that matter most to them. Our EL-PFDD meeting will help create that evidence and produce a public report that can inform researchers, clinicians, industry and the FDA.

You can participate in person in Phoenix or join virtually from anywhere. Whether you share your experience or listen and learn, your participation matters.

Learn more and register: https://fanconi.org/pfdd/

At 14, Blake is beginning high school with renewed confidence, meaningful friendships and a passion that is entirely his...
09/02/2026

At 14, Blake is beginning high school with renewed confidence, meaningful friendships and a passion that is entirely his own. His mom, Emily, shares what it means to celebrate the joy of this season while continuing to live with the uncertainty of Fanconi anemia.

Scroll through to meet Blake and see how perseverance, fishing and community have helped him find his stride.

Read his story: https://fanconi.org/finding-confidence-and-joy-as-a-teen-with-fa/

💌 Your support in action: More than 300 handmade cards for the FA community!Through the latest Postmarked With Love mail...
09/01/2026

💌 Your support in action: More than 300 handmade cards for the FA community!

Through the latest Postmarked With Love mailing, volunteers created more than 300 cards filled with encouragement, care and connection for individuals and families affected by FA.

This program is part of something larger that your generosity helps make possible: meaningful ways for people to show up for one another, especially during difficult seasons.

There’s always an opportunity to take part. Sign up to make cards, gather friends for a card-making activity or nominate someone affected by FA to receive a little extra love. Cards for the next mailing must arrive by Dec. 3.

Learn more: https://fanconi.org/send-your-support/

To everyone who made a card, supported FCF or helped bring this program to life, thank you for helping people in the FA community feel seen and remembered. 💙

Researchers now have a new way to study head and neck cancers in people with Fanconi anemia and explore safer treatment ...
08/26/2026

Researchers now have a new way to study head and neck cancers in people with Fanconi anemia and explore safer treatment options.

With your support, FCF invested $150,000 in research led by Jennifer Grandis and Daniel Johnson at UC San Francisco. Using tumor tissue donated by three people with FA, the team created laboratory models that closely reflect each person’s cancer.

When researchers tested targeted drugs, different tumors responded differently based on their unique features. The findings reinforce why personalized approaches matter and give researchers a valuable new tool for identifying which treatments may hold the most promise.

This progress began with three deeply meaningful tissue donations. Because FA-associated cancers are so rare, every donated sample offers an invaluable opportunity to learn.

First, we build the tools. Then, we use them to find the most promising path toward safer treatment. 🧬 Stay tuned for more updates.

Great to see our friends and partners at Fanconi Anaemia South Africa NPC helping spread awareness. Thank you for the im...
08/24/2026

Great to see our friends and partners at Fanconi Anaemia South Africa NPC helping spread awareness. Thank you for the important work you do!

What do you wish more people understood about living with Fanconi anemia?The FA Adult Council brings adults with FA toge...
08/24/2026

What do you wish more people understood about living with Fanconi anemia?

The FA Adult Council brings adults with FA together to share their perspectives, identify community needs and help shape FCF’s programs and resources.

If you’re an adult with FA and would like to help inform what comes next, we’d love to hear from you.

Learn more and apply: https://fagroupeval.formstack.com/forms/fadult_council_application_2026

08/21/2026

What's on the agenda for the Patient-Focused Drug Development Meeting this October?

Hear from our Community Programs Director to find out. We can't wait to see you there (in the room or virtually)! It's a big event and we need everyone to show up and share their personal FA experiences.

What do you want your legacy to make possible?August is National Make-A-Will Month, an opportunity to reflect on the peo...
08/19/2026

What do you want your legacy to make possible?

August is National Make-A-Will Month, an opportunity to reflect on the people, values and causes that matter most to you.

Including Fanconi Cancer Foundation in your estate plans can help advance research, strengthen support for families and create new possibilities for future generations affected by Fanconi anemia and associated cancers.

A legacy gift is a personal decision, and gifts of all sizes can make a lasting difference. Learn about the options available, or let us know if you’ve already included FCF in your plans: https://fanconi.org/estate-giving/

What if keeping track of oral health changes could be a little easier?Meet FA Exam, an app designed specifically for peo...
08/17/2026

What if keeping track of oral health changes could be a little easier?

Meet FA Exam, an app designed specifically for people with Fanconi anemia. It helps you know what to look for, document changes and keep important information ready to share with your care team.

Swipe to take a look inside, then download it free in the App Store or at Fanconi.de/faexam.

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360 E. 10th Avenue, Suite 201
Eugene, OR
97401

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