Sickle Cell Community Consortium

Sickle Cell Community Consortium There are over 200 non-profit Community-Based Organizations (CBOs) for sickle cell disease in the U.S. The Consortium exists to address the needs of the CBOs.

The Consortium was founded in February of 2014 to provide a platform to unify, strengthen and increase the visibility of SCD community-based organizations


https://linktr.ee/sicklecellconsoritum The Sickle Cell Community Consortium (SCCC) was founded in Februrary of 2014 to provide a platform to unify, strengthen and increase the visibility of sickle cell community-based organizations (CBOs) thro

ughout the country. This Consortium is founded on the belief that a "house divided against itself cannot stand" and a commitment to create an outstanding model of commUNITY and patient engagement. We have developed a unified entity, modeled after the U.N. where the individual needs of each CBO can be identified and addressed as a unit, while maintaining the autonomy of each individual organization. SCCC is not a CBO, nor does it seek to replace the actions or activities of existing CBOs. Sickle cell disease CBOs exist to address the needs of the sickle cell community. Our mission is to assist the CBOs in identifying the needs of their patient population, to aggressively seek funding to address those needs, provide infrastructure support and a platform for collaboration and cooperation between individual CBOs, governmental agencies and pharmaceutical and corporate stakeholders. Our CBO partners span across the country and are actively involved in direct patient services, support services, education, awareness and advocacy. These CBOs collaborate with the Consortium and with each
other on a wide range of projects to benefit the sickle cell community. These projects include, but are not limited to, the development of educational materials and sickle cell toolkits, transition services geared towards the teen
market, bereavement services and funeral cost assistance, medical accountability, legislative calls to action, and the creation of a platform to assist data collection and analysis for patient-reported outcomes and research. With strong commitment to fund-raising, charitable donations and grants, we have built, and will continue to strengthen and grow, a network of patient and advocate-powered community non-profit organizations dedicated to redefining what it means to live with, conquer and overcome sickle cell disease.

Men, we need you in the room tonight for WarriorCon 26!The 13th Annual Warriors Convention is coming to LA, California, ...
06/10/2026

Men, we need you in the room tonight for WarriorCon 26!

The 13th Annual Warriors Convention is coming to LA, California, July 22 to 26, and we are inviting men living with sickle cell, allies, advocates, mentors, caregivers, and community partners to help support the Men’s Track.

Join us tonight for the **Men’s Track Volunteer Meeting** as we prepare for honest conversations, men’s wellness, leadership, support, resources, and growth.

**Men’s Track Volunteer Meeting**
Tonight, Wednesday, June 10
7:00 to 8:00 PM ET

This is your chance to help shape a space where men feel seen, supported, heard, and connected at WarriorCon 26.

Register here: https://tinyurl.com/SC3WarriorConTrack26

For more information, contact Dominique Goodson at [[email protected]]([email protected])

**Nothing For Us Without Us.**

the Young adult volunteers meeting is happening NOW .. Jump in!
06/10/2026

the Young adult volunteers meeting is happening NOW .. Jump in!

Join SC3 for a series of WarriorCon 2026 track planning meetings. Partners, CBOs, IPCAs, advocates, patients, caregivers, and community members are invited to share ideas and help shape the track experience. Please select all track meetings you are interested in attending.

Young adults, we need y’all in the room tonight.WarriorCon 26 is coming to LA, California, July 22 to 26, and we want th...
06/10/2026

Young adults, we need y’all in the room tonight.
WarriorCon 26 is coming to LA, California, July 22 to 26, and we want the Young Adult Track to feel real, useful, and connected to what young adults in the sickle cell community are actually dealing with.
School. Work. Dating. Friendships. Mental health. Independence. Insurance. Doctors. Burnout. Finding your voice. Trying to build a life while managing your health.
That’s the kind of stuff we need to talk about.
Join us tonight for the Young Adult Track Volunteer Meeting and help us think through what this space should look like at WarriorCon 26.
Young Adult Track Volunteer Meeting
Tonight, Wednesday, June 10
6:00 to 7:00 PM ET
You do not have to have it all figured out. You just have to care enough to show up, share ideas, and help make sure young adults feel seen, heard, and supported.
Register here: https://tinyurl.com/SC3WarriorConTrack26
For more information, contact Dominique Goodson at [email protected].
Nothing For Us Without Us.

Calling all Warriors, caregivers, young adults, men, children, advocates, and community voices.WarriorCon 2026 is being ...
06/10/2026

Calling all Warriors, caregivers, young adults, men, children, advocates, and community voices.
WarriorCon 2026 is being built for us, by us, and we want to hear from the people who make this community what it is.
Tonight is our first volunteer track planning meeting, and we are inviting those who are planning to attend this year’s Warriors Convention to help shape the conversations, topics, and sessions that will happen in the room.
We especially want to hear from men, young adults, and children. Your voices need to be part of this planning process.
Track Planning Schedule:
Wednesday, June 10
Young Adult Track, 6:00 PM ET
Men’s Track, 7:00 PM ET
Thursday, June 11
Caregiver Track, 6:00 PM ET
Post-Transplant Track, 7:00 PM ET
Friday, June 12
Trait Track, 6:00 PM ET
Children’s Track, 7:00 PM ET
Register to join the track planning conversations:
https://tinyurl.com/sc3warriorcontrack26
Can’t come to a meeting, or not looking to help plan, but you have a topic idea, speaker suggestion, or something you believe should be discussed at WarriorCon this year or next? Submit your idea here:
https://tinyurl.com/Warriorcontopics
Please note: This is for community input and track planning participation only. This is not a travel, lodging, flight, scholarship, or registration support form.

🚨 The Partner Meeting has officially started!If you are a registered partner, please check your email for the meeting li...
06/05/2026

🚨 The Partner Meeting has officially started!

If you are a registered partner, please check your email for the meeting link sent by Ms. Maria Rivera.

We look forward to seeing you there as we share important updates, announcements, and information about upcoming opportunities.

📣 Friendly Reminder: Monthly Partner Meeting TonightSC3 partners, our monthly partner meeting is held on the 1st Friday ...
06/05/2026

📣 Friendly Reminder: Monthly Partner Meeting Tonight

SC3 partners, our monthly partner meeting is held on the 1st Friday at 7 PM EST.
Please check your email from your Partner Liaison, Maria Rivera, for meeting details and registration information.

Tonight’s meeting will include important updates and upcoming convention information, so we encourage all partners to make every effort to attend.
Your voice, questions, and participation matter as we continue planning and building together.

📣 Attention Partners!Join us tonight at 7:00 PM EST for our Warrior Convention Partner Meeting.We’ll be sharing importan...
06/05/2026

📣 Attention Partners!

Join us tonight at 7:00 PM EST for our Warrior Convention Partner Meeting.

We’ll be sharing important updates, key announcements, and everything you need to know about the upcoming 13th Annual Warrior Convention. Registration and scholarship information will be opening soon, and we want our partners to receive these details first.

Make plans to be in attendance and stay informed as we prepare for an incredible convention experience. We look forward to seeing you tonight!

Address

P. O. Box 1195
Atlanta, GA
30028

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm
Saturday 9am - 6pm

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