Sickle Cell Community Consortium

Sickle Cell Community Consortium There are over 200 non-profit Community-Based Organizations (CBOs) for sickle cell disease in the U.S. The Consortium exists to address the needs of the CBOs.

The Consortium was founded in February of 2014 to provide a platform to unify, strengthen and increase the visibility of SCD CBO’s

https://linktr.ee/sicklecellconsortium?utm_source=linktree_profile_share<sid=f09401e1-6038-4a18-8885-ca3b2b13fc86 The Sickle Cell Community Consortium (SCCC) was founded in Februrary of 2014 to provide a platform to unify, strengthen and increase the visibility of s

ickle cell community-based organizations (CBOs) throughout the country. This Consortium is founded on the belief that a "house divided against itself cannot stand" and a commitment to create an outstanding model of commUNITY and patient engagement. We have developed a unified entity, modeled after the U.N. where the individual needs of each CBO can be identified and addressed as a unit, while maintaining the autonomy of each individual organization. SCCC is not a CBO, nor does it seek to replace the actions or activities of existing CBOs. Sickle cell disease CBOs exist to address the needs of the sickle cell community. Our mission is to assist the CBOs in identifying the needs of their patient population, to aggressively seek funding to address those needs, provide infrastructure support and a platform for collaboration and cooperation between individual CBOs, governmental agencies and pharmaceutical and corporate stakeholders. Our CBO partners span across the country and are actively involved in direct patient services, support services, education, awareness and advocacy. These CBOs collaborate with the Consortium and with each
other on a wide range of projects to benefit the sickle cell community. These projects include, but are not limited to, the development of educational materials and sickle cell toolkits, transition services geared towards the teen
market, bereavement services and funeral cost assistance, medical accountability, legislative calls to action, and the creation of a platform to assist data collection and analysis for patient-reported outcomes and research. With strong commitment to fund-raising, charitable donations and grants, we have built, and will continue to strengthen and grow, a network of patient and advocate-powered community non-profit organizations dedicated to redefining what it means to live with, conquer and overcome sickle cell disease.

09/05/2026
09/05/2026
📣 Staff Meeting Reminder!The Sickle Cell Community Consortium Staff Meeting has started!Team, please check your emails f...
09/04/2026

📣 Staff Meeting Reminder!

The Sickle Cell Community Consortium Staff Meeting has started!

Team, please check your emails for the meeting link and join us now. ❤️

📣 Partner Meeting Reminder!Join the Sickle Cell Community Consortium TONIGHT for our Partner Meeting! ❤️We look forward ...
09/04/2026

📣 Partner Meeting Reminder!

Join the Sickle Cell Community Consortium TONIGHT for our Partner Meeting! ❤️

We look forward to connecting, sharing important updates, and continuing the work of strengthening our sickle cell community together.

We will try to keep it short and focused, but we have a few important updates to discuss:

✅LEAP

✅Sickle Cell Awareness Month

✅G2

✅Our upcoming end-of-year events

📣 SC3 PARTNERS, IT’S FIRST FRIDAY!Our monthly Partner Meeting is happening TONIGHT, and we want to see you in the room!W...
09/04/2026

📣 SC3 PARTNERS, IT’S FIRST FRIDAY!

Our monthly Partner Meeting is happening TONIGHT, and we want to see you in the room!

We have several important updates to discuss:

🔴 LEAP
🔴 Sickle Cell Awareness Month
🔴 General Assembly
🔴 Upcoming end-of-year events

We also want to hear what YOU are working on! Bring your upcoming events, programs, campaigns, and community updates so we can help promote your work across the Consortium’s social media platforms.

Please check your email for the Zoom meeting link. If you did not receive it, please contact Dominique Goodson at [[email protected]](mailto:[email protected]).

Bring your updates, bring your energy, and let’s make this an impactful Sickle Cell Awareness Month. See you tonight!

🔴 HAPPENING NOW!The Sickle Cell Disease Coalition’s 2026 Annual Summit is underway, and there is still time to register ...
09/03/2026

🔴 HAPPENING NOW!

The Sickle Cell Disease Coalition’s 2026 Annual Summit is underway, and there is still time to register and join us!

This free, fully virtual event features expert-led discussions, lived-experience stories, advocacy updates, and practical information focused on advancing whole-person sickle cell disease care.

Every Life Stage. Every Voice. Every Opportunity.

Register now: https://bit.ly/4wR8kEz

Please share this post and invite your community to join the conversation!

🎉 HAPPY BIRTHDAY, MS. ETTA CARTER! 🎉Today, the Sickle Cell Community Consortium is honored to celebrate one of our incre...
09/03/2026

🎉 HAPPY BIRTHDAY, MS. ETTA CARTER! 🎉

Today, the Sickle Cell Community Consortium is honored to celebrate one of our incredible team members, advocates, and beloved Golden Warriors, Ms. Etta Carter! ❤️✨

Ms. Etta, your life represents strength, perseverance, wisdom, and the power of continuing to show up for your community. As a Golden Warrior, you carry a legacy that reaches far beyond the years you have lived with sickle cell. You continue to use your voice, your experiences, and your heart to advocate for others and help move our community forward.

We are incredibly grateful for everything you bring to the Consortium and for the love and dedication you continue to pour into the sickle cell community.

Today, we give you your flowers! 💐

We celebrate Etta the woman. Etta the Warrior. Etta the advocate. Etta our team member. Etta the Golden Warrior. 👑❤️

Please join us in wishing Ms. Etta Carter a very HAPPY BIRTHDAY! 🎂🥳 May this next year of life be filled with love, joy, peace, beautiful memories, and continued blessings.

We love and appreciate you, Ms. Etta! ❤️

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P. O. Box 1195
Atlanta, GA
30028

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm
Saturday 9am - 6pm

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