Lowe Syndrome Association, Inc.

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Lowe Syndrome Association, Inc.

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Lowe Syndrome Association, Inc., Chicago Ridge, IL.

Our mission is to improve the lives of persons with Lowe syndrome and their families through fostering communication, providing education and supporting research so that individuals can attain their highest potential.

10/25/2026

Our Community in Action 💙

We’re celebrating Delta Kappa Epsilon at the University of Georgia for supporting the Lowe Syndrome Association through their 2026 Gator Roast!

Matthew Johnson and his fraternity brothers are raising funds for medical research in honor of Matthew’s brother, Andy, who lives with Lowe syndrome. We’re grateful for their efforts to raise awareness and make a difference for families in our community.

Want to support their efforts? Purchase a ticket or make a donation below, and select Matthew Johnson as the brother you’re supporting.

🔗 https://www.zeffy.com/en-US/ticketing/dke-gator-roast

Thank you, Matthew and the DKE brothers, for helping Open Doors for Lowe! 💙

10/24/2026

🚨JUST 1 MONTH TO GO! 🚨

We’re officially in the final countdown to the Second Annual Walk & Roll for Lowe Syndrome Awareness! Whether you’re walking, rolling, fundraising, or spreading awareness in your own community, every step helps us open doors for Lowe syndrome. 💙

🎯 $80,000 goal
🇺🇸 All 50 states
📅 November 24 – December 2, 2026
💙 Fundraising page is LIVE!

Help us make this year’s Walk & Roll one to remember!

🔗https://secure.givelively.org/donate/lowe-syndrome-association-inc/2nd-annual-walk-roll-for-lowe-syndrome-awareness

10/23/2026

We want to feature YOU in our next newsletter! 📸

We love seeing the special moments, everyday adventures, milestones, and celebrations happening throughout our Lowe syndrome community. We want to celebrate our community by sharing your photos in our next LSA newsletter!

📩Send your photos to: [email protected]

We can’t wait to see your pictures and celebrate the amazing moments that make our community so special! 💙

10/22/2026

We’re working toward our $80,000 fundraising goal, and every contribution helps move our mission forward!

Thanks to the generosity of our community, we’ve raised $10,450 so far! Every donation helps the Lowe Syndrome Association support individuals with Lowe syndrome and their families through education, research, and connection.

Help us reach our goal! Every contribution helps us continue this important work together.

🔗Donate today: https://secure.givelively.org/donate/lowe-syndrome-association-inc/2nd-annual-walk-roll-for-lowe-syndrome-awareness

10/19/2026

Not every disability is visible! 💙

During Invisible Disabilities Week, we’re recognizing the experiences of people whose disabilities may not be immediately apparent to others.

Lowe syndrome can affect individuals in many different ways. Taking the time to listen, learn, and understand can help create more supportive and inclusive spaces.

What is one thing you wish more people understood about invisible disabilities? Share your thoughts below.

Let’s keep creating a world where more doors are open to understanding and inclusion.

Help us continue raising awareness and supporting individuals and families living with Lowe syndrome: https://lowesyndrome.org/donate/

10/16/2026

It’s officially fall! 🍂

We want to know what our Lowe syndrome community loves most about the season!

🎃 Pumpkin everything
🍁 Changing leaves
🏈 Football season
☕ Cozy drinks
🍎 Fall treats
🧥 Sweater weather

What’s your favorite fall thing? Tell us in the comments or share a photo with us!

10/13/2026

October is National Disability Employment Awareness Month! 💙

People with disabilities bring unique talents, skills, and perspectives to the workplace. Creating inclusive opportunities helps make sure everyone has the chance to contribute, grow, and succeed.

What does an inclusive workplace look like to you? Share your thoughts in the comments!

Together, we can help Open Doors for Lowe.

Want to support the Lowe syndrome community? Learn more about how you can help: https://lowesyndrome.org/donate/

10/10/2026

Today is World Mental Health Day! 💙

Mental health matters, and everyone deserves to feel supported, understood, and connected.

For our Lowe syndrome community, having people who listen, understand, and walk alongside you can make a meaningful difference.

What is one thing that helps you feel supported on a difficult day? Share it in the comments. Your answer might be exactly what someone else needs to hear.

10/08/2026

When Stephanie and James decided to host their first Walk & Roll in honor of their son, Jackson, they weren’t sure what to expect. But with online outreach, company matching gifts, and nearly 50 people joining them on event day, their community showed up in a big way, and they raised more than $9,000 for the Lowe Syndrome Association!

Your community wants to support you, too. By starting your fundraiser today, you give your family, friends, coworkers, and community time to come together and make an impact, possibly raising more than you ever imagined.💙

Don’t wait. Open doors for Lowe syndrome research, care, and support by starting your fundraiser today: https://secure.givelively.org/donate/lowe-syndrome-association-inc/2nd-annual-walk-roll-for-lowe-syndrome-awareness

We’d love to see your photos! 📸Have photos you’d like to share with the Lowe Syndrome Association? Send them to marketin...

09/29/2026

We’d love to see your photos! 📸

Have photos you’d like to share with the Lowe Syndrome Association? Send them to [email protected] and we’ll send you a link to complete our photo release form.

Thank you for helping us celebrate and share our Lowe Syndrome community! 💙

Address

Chicago Ridge, IL

Telephone

+12166307723

Website

http://www.lowesyndrome.org/

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