Western PA Bleeding Disorders Foundation

09/15/2026

We are incredibly grateful to our amazing Gold Sponsors of the Run for Their Lives 5K! Your generous support helps make this event possible and allows us to continue raising awareness, building community, and supporting those affected by bleeding disorders. 🩸💙

A special thank you to:

👏 CSL Behring

👏 Bayer

Thank you for going the distance with us and helping make an impact for the bleeding disorders community! We are so thankful to have you as part of the Run for Their Lives 5K! 🏃‍♀️🏃‍♂️

09/15/2026

Run for Their Lives is THIS weekend! Who will you be running alongside? Tag your running buddies below!

Not yet registered for this incredible morning? There is still time to grab that discount pricing! Register by 6 PM on Friday to save $5. Price increases to $35 on race day!
Learn more at: https://bit.ly/runfortheirlives2026

09/14/2026

Kara and Janet had a great day at the PittServes Volunteer Fair at the University of Pittsburgh today! 💙💛
We loved connecting with students and other local nonprofits and finding new ways to team up and make an even bigger impact in our community!

Want to get involved? 💙 Email [email protected] to volunteer at one of our upcoming fundraisers. We’d love to have you join us! PittServes

09/14/2026

A big thank you to our amazing Pittsburgh Sponsors of the Unite for Bleeding Disorders Walk! We are proud to have your support as we come together to raise awareness, build community, and make a difference for those living with bleeding disorders.

Thank you to:

👏 American Red Cross Greater Pennsylvania
👏 Auto-Owners Insurance
👏 Beaver Area Jaycees
👏 PA Health & Wellness

Thank you for being part of our walk and helping us unite for the bleeding disorders community! 🩸

09/13/2026

⏰ Last chance to RSVP!

Don’t miss our upcoming Community Voices Program featuring Dr. Guy Young and two peers from the hemophilia community. Come learn about a subcutaneous prophylactic treatment for Hemophilia A or B, hear real-life experiences, and bring your questions!

📅 Thursday, September 17 | 6–9 PM
📍 Grand Concourse, Pittsburgh

RSVP by the end of the day TODAY, Sunday, September 13!
📧 [email protected] | 📞 724-741-6160

Please include the number attending and any food allergies or dietary restrictions.
Thank you to Sanofi for sponsoring this program!

09/13/2026

We’re excited to host Speak Your Truth: Managing Hemophilia A May Come with Trade-Offs in partnership with the West Virginia Bleeding Disorders Foundation!

Managing hemophilia A can come with challenges that aren’t always easy to bring up, like breakthrough bleeds, administration, dosing, or even questions about whether your current treatment approach is working for you. This program will offer an opportunity to explore common challenges and learn ways to make your conversations with your health care professional more productive.

🗓️ Thursday, September 24, 2026
🕡 6:30 PM
💻 Virtual Education Dinner
📩 RSVP by 3 PM on September 24: [email protected]

Please include the number of attendees. Attendees will receive a $15 DoorDash e-gift card (up to $45 per family) after attending the entire program.

This program is generously sponsored by Novo Nordisk.

09/12/2026

Come for the run, stay for the fun! After you cross that finish line, the spirit of our race doesn’t end! We’ll have free breakfast snacks and treats, including McDonald’s breakfast sandwiches, Dunkin’ Donuts, and Eat N’ Park Smiley Cookies, incredible raffles, our UNITE Carnival, face painting, and so much more!

Help us reach 100 runners! Register today and make your miles matter at: https://bit.ly/runfortheirlives2026

09/11/2026

People living with hemophilia, sickle cell disease, thalassemia, blood clots, and other blood disorders rely on strong federal public health programs.

That is why the Western PA Bleeding Disorders Foundation joined the American Society of Hematology and more than 50 organizations in urging newly appointed CDC Director Dr. Erica Schwartz to fully restore the staffing, leadership, expertise, and operational capacity of the Division of Blood Disorders and Public Health Genomics.

The letter also calls on CDC to engage directly with patients, providers, grantees, states, and other stakeholders as it works to address disruptions and restore continuity.

ASH led more than 50 organizations representing patients, health care providers, researchers, and public health professionals in sending a letter to CDC Director, Dr. Erica Schwartz urging the agency to restore the Division of Blood Disorders & Public Health Genomics (DBDPHG) to full operational capacity.

The letter highlights the Division’s critical role in supporting surveillance, data collection, laboratory services, and public health programs for people living with sickle cell disease, hemophilia, thalassemia, blood clots, and other blood disorders.

The blood disorders community stands ready to work with CDC to strengthen these essential programs and improve outcomes for patients and communities nationwide.

Read the full letter: https://ow.ly/qK3t50ZMxxi

09/11/2026

We are so grateful for the incredible Supporter Sponsors of the Unite for Bleeding Disorders Walk! Your generosity helps strengthen our community, spread awareness, and support individuals and families affected by bleeding disorders. Thank you for believing in our mission and standing with us!

Thank you to:
👏 American Electric Power - AEP
👏 Columbia Gas of Pennsylvania & the NiSource Foundation
👏 M and M Cabinets
👏 My Hero's Sub Shop
👏 Robinson Pipe Cleaning Co.
👏 The Spanos Group of Raymond James

09/11/2026

Don’t Be Afraid to Ask More Than Once! The Unite for Bleeding Disorders Walk is just one week away! If you’ve already shared your fundraising page, don’t be afraid to share it again.

Your friends, family, and supporters may have missed your post, meant to donate but got busy, or simply need a reminder. A final update before Walk Day is a great way to build excitement and give others a chance to be part of your journey.

Remember: Your loved ones aren’t supporting you just because you asked. They’re supporting you because they care about you, your story, and the bleeding disorders community!

Keep sharing, keep inspiring, and let's finish strong! Register or donate today: https://bit.ly/wpbdf-unite