Delasber's Heart, LLC

Delasber's Heart, LLC A advocate for special needs families in the educational and medical arena of the challenging world.

12/22/2025
Study the picture....
11/21/2025

Study the picture....

Is this what you voted for?Because we tried to warn you.Some of y’all were more worried about the price of eggs than abo...
05/11/2025

Is this what you voted for?
Because we tried to warn you.

Some of y’all were more worried about the price of eggs than about people like my daughter—who is very much alive and dependent on Medicaid to stay that way.

She receives TWO infusions every week. A few months ago, Louisiana Medicaid said they wouldn’t pay for one. She spiraled. She ended up in the PICU—on life support.

This is real life for us.

So before you brush us off or talk about “entitlements”—know this is what you voted for.

And THIS is why I stay stressed, on edge, and constantly fighting.
Because I don’t get the choice to stop.

Sitting here in the PICU with Amoree, I’m reminded:Life as a caregiver doesn’t pause for the storms. We keep moving.Whil...
04/25/2025

Sitting here in the PICU with Amoree, I’m reminded:
Life as a caregiver doesn’t pause for the storms. We keep moving.

While Ame fights her fight, I’m finishing the Caregiver POWER Journal — a 365-day journey to help caregivers like me stay strong, nurture ourselves, and keep reaching for our dreams.

Purpose is vital to a caregiver’s mental health. Sometimes the work we do outside of caregiving is what keeps us grounded inside the chaos.

Don’t ever think caregivers need less — we often need more. More hope. More outlets. More ways to keep living while we keep loving.

We don’t stop because of the storm.
We learn to dance in the rain.

We should all learn this…
07/27/2024

We should all learn this…

07/01/2024

Embracing Amoree’s Journey: Finding Strength in Resilience

Life as a special needs mom is a journey like no other. It’s a path filled with both profound love and intense challenges. Embracing this journey, especially with my dear Amoree, has been one of the most difficult yet rewarding experiences of my life.

Embracing the journey doesn’t mean that it’s always easy or that I succeed every day. There are many moments when I feel overwhelmed, moments when I falter and fall. But what I’ve learned is that it’s not about never falling; it’s about how resilient we are in picking ourselves up and continuing on, no matter how many times we stumble.

Here are some ways I’ve found to truly embrace Amoree’s journey, even when it’s hard:

1. Accepting Imperfection: One of the first steps in embracing this journey has been accepting that it’s okay to be imperfect. There will be days when I feel like I’m failing, but I’ve learned to give myself grace and understand that doing my best is enough.

2. Finding Joy in Small Moments: Amidst the challenges, there are countless moments of joy. Whether it’s Amoree’s smile, a gentle touch, or a small milestone, I’ve learned to cherish and celebrate these moments. They remind me of the beauty and love in our journey.

3. Building a Support Network: Surrounding myself with supportive friends, family, and fellow caregivers has been crucial. They lift me up when I’m down, offer a listening ear, and provide practical help when needed. Their presence makes the journey feel less lonely.

4. Practicing Mindfulness and Gratitude: Taking time each day to be mindful and express gratitude helps me stay grounded. Whether it’s through journaling, meditation, or simply taking a moment to breathe deeply, these practices help me find peace and focus on the positives.

5. Leaning on Faith and Spirituality: My faith has been a cornerstone of my resilience. Prayer, meditation, and connecting with my faith community provide comfort and strength. They remind me that we are not alone in this journey and that there is a greater purpose to our struggles.

6. Seeking Professional Support: Therapy and counseling have been invaluable. Talking to a professional helps me process my emotions, manage stress, and develop coping strategies. It’s a safe space to be vulnerable and seek guidance.

7. Allowing Myself to Grieve: It’s important to acknowledge and grieve the losses and hardships. Allowing myself to feel sadness and frustration without guilt is part of the healing process. It’s okay to mourn the difficult moments as long as we don’t let them define our journey.

8. Staying Informed, but Balanced: Educating myself about Amoree’s condition and care is essential, but I also recognize the need to take breaks from the constant influx of information. Striking a balance helps me stay informed without becoming overwhelmed.

Embracing Amoree’s journey is a continuous process. There are days when I struggle, days when I fall off the “embrace the journey” wagon. But each time I pick myself up, I become stronger and more resilient. It’s a testament to the incredible love and determination we, as caregivers, possess.

To all the parents and caregivers out there, remember that it’s okay to falter. It’s okay to feel overwhelmed. What matters is our ability to rise again, to find strength in our love, and to continue embracing the journey, no matter how difficult it may be.

04/26/2024

There comes a time in each of our lives where we must make choices that might not set well with us. People must go! Things must go! We must chose to ignore and simply be in the moment!

Special needs moms do this almost every minute of the day. My daughter is about to be 13 years old. I decided to go through her life on last night after posting about her meds and the struggles that we go through... and what I found was simply this....

Amoree has been alive 4,701 days. That is 12 years, 10 months and 13 days. For a while it seemed like we got a new medical diagnosis every year... and we did.... But, what I had not looked at is this.... out of those 4,701 days in this world... Amoree has spent 896 days in the pediatric intensive care unit and 49 days on the floor of a hospital. She has been on the ventilator 76 days of those days. We have gone through four times when doctors didn't believe she would survive. I have watched PICU doctors stand at her bed crying tears of joy because they thought when they came back to work she would be dead.

Amoree fights everyday to continue to live, breathe, sit up and even smile. I have done everything in my life that I wanted to do. I have accomplished everything that I wanted to accomplish in life. Being a teacher was my passion. I still love all of my students and will fight for them til the end of time. But, you know what? I will fight until my death for my daughter. She is my greatest accomplishment. I will not let anyone come for her or at her. People can do and say whatever they will about me... but this little girl... to the death I will fight.

There are many of us single parents fighting the good fight right now.... If you are single, married, widowed, hooked up..... and need help, contact me... I am here for you.

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Baton Rouge, LA

Opening Hours

9am - 3pm

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