Spina Bifida Association of Florida

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Spina Bifida Association of Florida

To build a better and brighter future for all those impacted by Spina Bifida. Become a member. SBACFL Membership is free!

https://sbacentralflorida.org/become-a-member/

09/17/2026

💙 DEADLINE TOMORROW!

We want to hear from the Spina Bifida community before our Awareness Month survey closes.

What are you proud of? Who deserves recognition? What progress do you hope to see in the year ahead?

📝 Take the survey by tomorrow: https://vist.ly/5it5q

Your voice helps make Spina Bifida Awareness Month reflect what matters most to our community.

09/16/2026

Big cheers for our amazing Walk-N-Roll sponsors! 🎉

Our 2026 season is made possible by partners who believe in the power of community and the importance of supporting people with Spina Bifida.

We’re excited to celebrate our Season Snack Sponsor, Coloplast, whose logo will be featured at the snack table at every Walk-N-Roll event throughout the season!

A special shout-out to our Gold Sponsors:

👏 Byram Healthcare
👏 Convatec Continence Care

Thank you for helping us bring people together, raise critical funds, and make Walk-N-Roll a success!

Show these incredible partners some love in the comments! 💙

Ready to get involved? Register, start a team, or join us in making a difference: https://vist.ly/5g2r3

09/16/2026

🎉 WALK-N-ROLL IS BACK ONLINE!

Great news! Our website, email, and online fundraising pages are now fully functional. Thank you for your patience while our systems were down.

You can now register for a Walk-N-Roll, Walk-N-Roll Your Way, or Team Spina Bifida, sign up to volunteer, and access your online fundraising page!

💻 REGISTER & GET INVOLVED:
https://vist.ly/5inm9

💰 FUNDRAISING & DONATIONS
Your Walk-N-Roll fundraising page is ready for online donations! It may take a few refreshes for the new domain to load properly.

📧 QUESTIONS ABOUT WALK-N-ROLL?
Email us at [email protected].

We’re working hard to update our resource documents and other materials with the new email addresses. Thank you for your patience as we make these updates!

💙 Thank you for your continued patience and support.

09/15/2026

🥦 Spina Bifida and Healthy Eating: Practical Nutrition Tips

Making mealtimes manageable while supporting your or your child’s health and independence can be a challenge. Join us for a family-friendly conversation filled with practical nutrition tips for families raising children with Spina Bifida.

🗓 Tuesday, September 22, 2026
⏰ 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
🔗 Register now: https://vist.ly/5ikaj

🎙️ Featuring JoAnne Whelan, PhD, LD, RDN

During this session, we’ll explore:

✨ Strategies for navigating picky eating and gradually introducing new flavors and textures
✨ Tips for balancing home-cooked meals and packaged foods
✨ Meal timing considerations when taking medications
✨ The important role of protein in healing and wound management
✨ Practical ways to apply the Nutrition Guideline for the Care of People with Spina Bifida to everyday family life

Whether you're looking for new ideas for mealtimes or ways to support you or your child’s nutrition and recovery, this session will offer helpful guidance you can put into practice.

09/15/2026

Sepsis Awareness Month: Know the Connection to Spina Bifida

For people with Spina Bifida, several types of infections can be a health concern, including urinary tract infections (UTIs), skin and wound infections, and shunt-related infections.

During Sepsis Awareness Month, we’re highlighting the connection between sepsis and these types of health concerns, which can be more common among people with Spina Bifida.

Sepsis is the body’s extreme response to an infection and is a life-threatening medical emergency. It can develop from a problem that begins in the urinary tract, skin or a wound, or around a medical device such as a shunt.

For some people with Spina Bifida, certain warning signs may be less obvious or may present differently, making it especially important to recognize what is normal for your body and to be aware of any changes.

While a UTI, skin or wound infection, or shunt-related infection is NOT sepsis, symptoms that worsen require attention.
Recognizing changes early and seeking appropriate medical care are important steps for protecting your health.

To learn more about sepsis, including how to recognize the signs and when to take action, watch SBA’s “Take Action Now to Stop Sepsis” video: https://vist.ly/5ihx5

09/14/2026

💙 Help us celebrate the Spina Bifida community!

October is Spina Bifida Awareness Month, and we want to hear from YOU.

What are you proud of? Who deserves recognition? What progress do you hope to see in the year ahead? Your responses will help shape what SBA celebrates, shares, and prioritizes during Awareness Month and beyond.

📝 Take the survey: https://vist.ly/5ifq4

Please complete the survey by Friday, September 18, 2026.

Your voice helps make Awareness Month reflect what matters most to the Spina Bifida community.

09/14/2026

🛡️ Resource Spotlight: Keeping Children with Spina Bifida Safe

Every child deserves to feel safe, supported, and empowered. Children with disabilities may face a higher risk of sexual abuse. This resource offers families and caregivers information to help recognize risks and create safer environments for children with Spina Bifida.

📖 Learn more: https://vist.ly/5ide8

💙 Share this resource with a family, caregiver, or someone in your community who may find it helpful.

09/11/2026

🎉 Great news! We’re back online!

Our website, email, and online fundraising pages are now fully functional. Thank you for your patience while our systems were down.

You can now visit https://www.spinabifidaassociation.org to find information, resources, and ways to get involved with the Spina Bifida Association.

📥Updated SBA Email Addresses

There has been a slight change to SBA staff email addresses. All SBA email addresses now end in spinabifidaassociation.org.

You can find current email addresses for SBA staff and leadership here: https://www.spinabifidaassociation.org/about-spina-bifida-association/board-of-directors-and-staff

Please note that previous SBA email addresses are no longer active.

💰General donations can be made at give.spinabifidaassociation.org/campaign/761241/donate

🚶👨‍🦽Walk-N-Roll Fundraising & Donations

Register for a Walk-N-Roll or Walk-N-Roll Your Way, or sign up to volunteer at https://www.spinabifidaassociation.org/walk-n-roll-for-spina-bifida

You can now fundraise online through your Walk-N-Roll fundraising page. Your page URL will start with give.spinabifidaassociation.org. It may take a few refreshes for the new domain to load properly.

You can also:
📬 Mail your donation to SBA using the Walk-N-Roll Donation Form: https://drive.google.com/file/d/1dlN0WYA1qym66HQAa_-pmGWGOE1Rt6ke/view

Spina Bifida Association
2000 Duke Street, Suite 300
Alexandria, VA 22314

📍 Bring your donation to your local Walk-N-Roll: Complete the Walk-N-Roll Donation Form and turn it in with your donation at the event.

Thank you for your patience and continued support of SBA and Walk-N-Roll! 💙

09/09/2026

Our website, email, and online fundraising pages are temporarily down due to a technical issue. We're working on it and expect to have an update soon.

A few things to know:

Our events in Charleston and Atlanta this weekend are happening as planned. We'll be ready to accept registrations and donations on site.

If you emailed us recently, we may not have received it. If it's urgent, please message us here instead.

If you were planning to give or share your fundraising page today, please hold tight. We'll post the moment everything is back up, and there will be plenty of time to reach your goal.

Thank you for your patience and for showing up for our community.

09/08/2026

Hydrocephalus Awareness Month: The Connection to Spina Bifida

For many people with Spina Bifida, hydrocephalus is part of their health journey from the very start.

Hydrocephalus occurs when cerebrospinal fluid builds up in the brain. About 60–80% of people with Spina Bifida need a shunt to help drain that excess fluid and relieve pressure on the brain.

While a shunt can effectively manage hydrocephalus, it also requires lifelong awareness. Shunts can malfunction or become infected, making it important for people with Spina Bifida, their families, and caregivers to understand how their shunt works and know what changes may signal a problem.

This Hydrocephalus Awareness Month, we’re highlighting a condition that is an important part of life for so many members of our community.

Learn more about hydrocephalus and shunts from SBA at https://vist.ly/5hnt8

Address

2000 Duke Street, Suite 300
Arlington, VA
22314

Telephone

+18006213141

Website

http://www.spinabifidaassociation.org/

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