Epilepsy Foundation of Northeastern New York

06/17/2026

Just ONE WEEK until Under the Lights - A Film, A Movement comes to Albany! Do you have your tickets secured? ⏳🎬💜

Join us on Wednesday, June 24th at Albany Medical College for a powerful story of risk, resilience, and what it means to feel “normal” when living with epilepsy.
Don’t miss this special advance screening followed by a live Q&A with Writer/Director Miles Levin.

Tickets are limited. Learn more and purchase tickets today by visiting: https://bit.ly/UndertheLightsEFNENY

Special thanks to our Red Carpet Sponsors: UCB, SK Life Science and Albany Med Health System for their support in helping us make this special evening happen.

06/11/2026

Join us for an evening of storytelling, awareness, and community. 💜🎬

Under the Lights - A Film, A Movement shares a powerful story of living with epilepsy, identity, and the risks we take to feel seen and understood. Stay after the screening for a live Q&A with Writer/Director Miles Levin and be part of this important dialogue.

📍 Wednesday, June 24 | Albany Medical College, ME300

Tickets are limited. Learn more and purchase tickets today by visiting: https://bit.ly/UndertheLightsEFNENY

06/09/2026

Stronger together this summer. 💜

This June, find connection, compassion, and support through our epilepsy support groups. Each group offers a safe, welcoming space to share your story, learn from others, and build meaningful connections with people who truly understand.

For details and registration, visit: https://efneny.org/support-groups/

06/08/2026

A story that shines a light on epilepsy, identity, and the moments that define us.💜🌟

Under the Lights - A Film, A Movement is coming to Albany on June 24th for a special advance screening at Albany Medical College. Experience this powerful film and stay for a live conversation with Writer/Director Miles Levin.

Tickets are limited. Learn more and purchase tickets today by visiting: https://bit.ly/UndertheLightsEFNENY

06/06/2026

It’s official, tickets are available for a special advance screening of Under the Lights - A Film, A Movement in Albany! 🎬💜🌟

Follow one teen’s journey as he risks everything for one unforgettable night, navigating epilepsy, first love, and the desire to feel “normal.”

Join us June 24th at Albany Medical College, ME300 for this special advance screening + live Q&A with Director Miles Levin.

Tickets are limited. Ticket price includes dinner prior to the movie.

Learn more and purchase tickets today by visiting: https://bit.ly/UndertheLightsEFNENY

06/05/2026

Congratulations to Kevin Volk, who recently hit the 17-year anniversary of being seizure-free!💪💜

We’re honored to have walked alongside Kevin on his epilepsy journey and to celebrate this meaningful milestone with him. As a dedicated member of our Board of Directors and a former Board President, Kevin continues to make a lasting impact through his leadership and commitment. We are incredibly grateful for his passion, generosity, and unwavering support of others navigating the challenges of epilepsy. We are so excited for you, Kevin!

06/03/2026

After two decades of dedicated service, we announce with both gratitude and bittersweet emotion the retirement of our Director of Donor Engagement, Susan Kaczynski.

For 20 years, she has been a driving force behind our mission, growing our special events, building meaningful relationships, strengthening our community of supporters, and ensuring that every donor felt connected to the impact of their generosity. Her leadership has helped shape not only our growth, but also the culture of care and commitment that defines our organization today.

Susan’s retirement comes at a special moment in our history as we celebrate our 45th anniversary this year. It is a fitting time to reflect on the people who have helped carry our mission forward—and she stands among those who have made an enduring difference.

In honor of her remarkable legacy, we invite you to make a donation to support the work she has championed for so many years. Your gift is a meaningful way to celebrate her contributions and ensure that the mission she cares so deeply about continues to thrive for years to come. Learn more and donate by visiting https://bit.ly/4uQHwnZ

Join us in expressing our heartfelt thanks and best wishes as she begins this next chapter. Her impact will be felt for generations.

05/26/2026

1 in 26 people will be diagnosed with epilepsy in their lifetime. Meet Hannah, this month's 1 in 26 featured Face of Epilepsy!

Hannah was diagnosed with epilepsy at the age of 25 and, in the two years since, she has refused to let it define her. Instead, she has reimagined her life with resilience, determination, and a strong commitment to advocating for herself and others.

Early on in her journey with epilepsy, Hannah struggled to return to her old life, often asking, “When will I feel better again?” Frustrated by not feeling heard by her care providers, she found a new neurologist who she felt truly listened to her, spending hours understanding her story and developing a care plan that best supported her needs. She shared the difficulty she had from going from living a rather “normal” life to having her life completely changed. Grieving the life she once lived and the idea of her future she once had. Things she was once able to do became much harder to do.

Hannah is currently seizure-free, working on continuing to rebuild a fulfilling life full of accomplishments, new experiences, and happy moments. Looking ahead, Hannah is focused on continuing to build a life where epilepsy does not limit her dreams while continuing to grow personally and professionally. She is committed to being a voice for epilepsy awareness and support, reminding others that while epilepsy can change your path, it does not define who you are.

Read the rest of Hannah's story by visiting https://efneny.org/2026/05/26/may-1-in-26-hannah-deetz/

Do you have epilepsy and reside in one of the 22 counties of northeastern New York served by the Epilepsy Foundation of NENY? Would you like to share your story in our next 1 in 26 feature? Contact Gabby at [email protected]. Everyone has a story. Share yours!

05/21/2026

It's official! Under the Lights - A Film, A Movement is coming to Albany! 💜

Under the Lights follows a teenager with epilepsy ready to risk everything for one unforgettable night at prom, first love, and the kind of trouble that might make him feel ‘normal’ even if epilepsy turns that night into a dangerous gamble.

Join us on Wednesday, June 24th at Albany Medical College (ME300) for a special showing of the breaking feature film, Under the Lights, followed by a live Q&A with Writer/Director, Miles Levin.

Tickets are limited. Learn more and purchase tickets today by visiting: https://lnkd.in/dcA2QPFn

Thank you to everyone who voted to make this happen!

Announcing the June line up for Under the Lights screenings - the movie breaking epilepsy stigma forever!

Under the Lights follows a teenager ready to risk everything for one unforgettable shot at prom, first love, and the kind of trouble that might make him feel ‘normal’ even if epilepsy turns that night into a dangerous gamble.

We are coming to cities that want to see the movie the most. Let’s do this!

Get tickets and vote for your city to get added to the calendar at the same link:

www.underthelightsfilm.com/voteforyourcity

Will I see you there?