Canadian Cancer Survivor Network

Canadian Cancer Survivor Network Le Réseau canadien des survivants du cancer travaille afin d'accroître la défense des intérêts des patients atteints du cancer.

The Canadian Cancer Survivor Network works to increase advocacy and to train patient/survivor advocates to promote and engage in the development of policy for optimal cancer care and follow-up for patients, survivors, their families and communities. Il veut aussi former des patients/survivants du cancer qui pourront promouvoir et participer à l'élaboration de politiques pour des soins optimaux aux

patients atteints de cancer et pour un suivi pour les patients, les survivants du cancer, leurs familles et les communautés.

Do you have ROS1-positive non-small cell lung cancer (NSCLC)? Patient organizations are gathering input from patients w...
09/03/2026

Do you have ROS1-positive non-small cell lung cancer (NSCLC)?

Patient organizations are gathering input from patients with ROS1-positive NSCLC to inform a funding review of taletrectinib in Canada.

We are seeking individuals who have ROS1-positive NSCLC, and are especially interested in connecting with individuals who have accessed taletrectinib, to share their experiences by participating in a confidential 45-minute telephone interview.

Patient perspectives play a critical role in helping decision-makers better understand the real-world impact of cancer and its treatments.

If this applies to you or someone you care for, we encourage you to participate and share your experience.

👉 To learn more or take part, please contact Winky Yau at [email protected]

Your voice can help shape others’ access to this therapy. 💙

A voice and a choice: Canadians with cancer are looking for care that fits within their liveshttps://tinyurl.com/584w7e9...
09/01/2026

A voice and a choice: Canadians with cancer are looking for care that fits within their lives
https://tinyurl.com/584w7e9v

While the physical effects of cancer are well recognized, the practical burden of treatment is often less visible or taken into consideration. Organizing transportation, taking time away from work, arranging childcare and spending hours travelling to and from appointments is typically part of patients’ routines for months or even years. It can feel overwhelming when someone is already facing the unthinkable.

For Canadians like Richard-Tougas, those realities underscore an important message. Some cancer treatments can be effectively delivered in different ways, so knowledge of what options may be available and talking openly with a health-care team about how treatment fits into daily life can make a meaningful difference.

Tailored to reflect the unique needs of your local community, the Lung Cancer Connect nationwide event series offers a s...
08/31/2026

Tailored to reflect the unique needs of your local community, the Lung Cancer Connect nationwide event series offers a space for patients, survivors, caregivers, clinicians, and advocate to learn, share, and connect.

Three autumn dates announced!

Edmonton
• Date: Tuesday October 6th, 2026
• Time: 5:00 pm - 8:00 pm
• Location: Virtual, or in-person at The Action Lab, #210 Parkington Plaza, 10408 – 124 Street NW, Edmonton, AB

Winnipeg
• Date: Thursday November 26th, 2026
• Time: 5:00 pm - 8:00 pm
• Location: Virtual, or in-person at CancerCare Manitoba, 675 McDermot Ave, Winnipeg, MN

Ottawa
• Date: Wednesday December 9th, 2026
• Time: 5:00 pm - 8:00 pm
• Location: Virtual, or in-person at a location to be determined.

Learn more and register at https://bit.ly/1012LCConnect

Together, we’re not just holding events — we’re building a movement for better lung cancer care, from coast to coast.

Help create a world where bladder cancer is just a memory.On September 19th or 20th, join your community’s 16th annual C...
08/28/2026

Help create a world where bladder cancer is just a memory.

On September 19th or 20th, join your community’s 16th annual Canada Walks for Bladder Cancer, a national fundraising event led by Bladder Cancer Canada.

Bladder cancer remains one of the most common cancers in Canada, yet awareness is still relatively low. Events like this help close that gap by funding research, supporting patients, and increasing public understanding of the disease.

Every step taken provides essential support for patient programming, raises life-saving awareness, and funds groundbreaking research that pursues the diagnosis, treatment, and elimination of bladder cancer.

Learn more and register to walk at https://fundraise.bladdercancercanada.org

Or volunteer to help behind the scenes! To get started, email [email protected]

Connect & Learn: Vancouver• Date: September 12, 2026• Location: Museum of Vancouver, 1100 Chestnut St., Vancouver, BC V6...
08/27/2026

Connect & Learn: Vancouver

• Date: September 12, 2026
• Location: Museum of Vancouver, 1100 Chestnut St., Vancouver, BC V6J 3J9

The Leukemia & Lymphoma Society of Canada (LLSC) invites those in the Vancouver area to join them for a free, in-person Connect & Learn event.

Join people affected by blood cancer, caregivers, healthcare professionals, and supporters for a day of learning, connection, and community. Hear from experts and individuals with lived experience on topics including:

• The who, what, and why of CAR T-cell therapy
• Mental and emotional support in the face of uncertainty
• Managing brain fog, fatigue, and insomnia
• A lived experience presentation from a person affected by blood cancer and their caregiver

Learn more & Register: bloodcancers.ca/events/connect-learn-vancouver

Canada's first national study seeks 500 participants to close pancreatic cancer care gapshttps://tinyurl.com/3z3d3msuCra...
08/26/2026

Canada's first national study seeks 500 participants to close pancreatic cancer care gaps
https://tinyurl.com/3z3d3msu

Craig's Cause Pancreatic Cancer Society (CCPCS) is mobilizing Canada's first national, ethics-approved study examining the experiences of pancreatic cancer patients and caregivers to address stagnant survival rates for one of the country's most lethal cancers.

Led by Dr. Ravi Ramjeesingh of Dalhousie University, the initiative seeks to analyze systemic gaps in diagnosis and equitable access to current treatments and management.

Have you or a loved one been diagnosed with locally advanced re**al cancer? Dostarlimab (JEMPERLI®) is anticipated to un...
08/26/2026

Have you or a loved one been diagnosed with locally advanced re**al cancer?

Dostarlimab (JEMPERLI®) is anticipated to undergo a funding review in Canada for adults with mismatch repair deficient dMMR)/microsatellite instability-high (MSI-H), stage II/III, locally advanced re**al cancer. As part of this process, we invite patients and caregivers to share their experiences in a confidential 45-minute telephone interview.

You do not need to have received dostarlimab to take part — we want to hear from stage II or III re**al cancer patients at all stages of treatment, including those who were treated and later progressed.

Patient perspectives are crucial to helping decision-makers better understand the real world impact of cancer and its treatments.

If this applies to you or someone you care for, we encourage you to reach out to learn more about how you can help.

Please contact Cassandra Macaulay at +1 833-792-2726 ext. 1001 or [email protected] for more information.

Patient organizations are gathering input from patients with locally advanced or metastatic non-small cell lung cancer (...
08/23/2026

Patient organizations are gathering input from patients with locally advanced or metastatic non-small cell lung cancer (NSCLC) to inform a funding review of taletrectinib in Canada.

We are seeking patients or caregivers to complete a short confidential online survey about their experience with advanced or metastatic NSCLC and its treatments.

Patient perspectives play a critical role in helping decision-makers better understand the real-world impact of cancer and its treatments.

If this applies to you or someone you care for, we encourage you to participate and share your experience.

👉 To learn more or take part, please complete the survey here: https://www.surveymonkey.com/r/SM26_Ibtrozi_lung

Your voice can help shape others’ access to this therapy. 💙

Do you have non-small cell lung cancer (NSCLC) with a MET exon 14 skipping alternation or know someone who has? We are s...
08/19/2026

Do you have non-small cell lung cancer (NSCLC) with a MET exon 14 skipping alternation or know someone who has?

We are seeking input from patients, survivors and caregivers, especially those with treatment experiences with tepotinib, to inform a funding review by Canadian regulatory bodies.

You do not need to be a Canadian to help.

Patient perspectives play a critical role in helping decision-makers understand the real-world impact of cancer and its treatments.

To learn more or take part, please choose which option best works for you:

• Online survey: surveymonkey.com/r/LCtepotinib
• Telephone or Virtual Interview: Contact Winky at [email protected]

Your voice can help shape others’ access to this therapy.

London, Ont. researchers find genetic testing can unlock new cancer treatment optionshttps://www.ctvnews ca/london/artic...
08/19/2026

London, Ont. researchers find genetic testing can unlock new cancer treatment options

https://www.ctvnews ca/london/article/london-ont-researchers-find-genetic-testing-can-unlock-new-cancer-treatment-options/

A new study from London Health Sciences Centre Research Institute (LHSCRI) is pointing to a potential shift in how doctors treat cancer, finding that expanded genetic testing can help identify treatment options that may otherwise be missed.

Address

1750 Courtwood Crescent, Suite 210
Ottawa, ON
K2C2B5

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

(613) 898-1871

Website

Alerts

Be the first to know and let us send you an email when Canadian Cancer Survivor Network posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Canadian Cancer Survivor Network:

Shortcuts

Share