Lupus Canada

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Lupus Canada

We are Lupus Canada. Our vision is life without Lupus, but before then, we work to ensure people living with Lupus are living well.

Consider making a donation today: https://www.lupuscanada.org/donation/ This page is Lupus Canada’s official and authentic public presence on Facebook. The purpose of the Lupus Canada page is to further Lupus Canada’s vision and mission, support learning, and enhance communication with patients, parents/guardians, volunteers, and community members. This page brings together a number of r

esources and information to provide the most up to date resources and support to individuals living with Lupus and their families. We work towards a vision of life without lupus, but before then we want to ensure the Over 1:1000 Canadian men, women and children living with lupus are living well. Lupus is a chronic autoimmune disease characterized by inflammation in one or more parts of the body. A complex disease, it can target any tissue or organ of the body including skin, muscles, joints, blood, lungs, heart, kidneys and the brain. Men, women and children can be diagnosed with lupus but between the ages of 15 and 45, nine times more women than men are diagnosed. Lupus is under-funded and under-recognized, therefore making it life-altering and life-threatening. While lupus is a serious condition, in most cases it can be treated and controlled. Diagnosis and treatment are improving, allowing people to live increasingly active and productive lives.

05/20/2026

Today, Lupus Canada is honoured to recognize Dr. K. Tselios as the recipient of the 2026 Patients’ Choice Award for Canadian Rheumatologist of the Year. 💜

This year, more than 400 votes and nominations were submitted by people living with lupus across Canada, highlighting the physicians who have made patients feel heard, supported, respected, and cared for throughout their lupus journey.

Patients recognized Dr. Tselios not only for his clinical expertise, but for the compassion and humanity he brings to patient care.

Thank you to everyone who participated in this year’s campaign and helped shine a light on the importance of patient centered lupus care in Canada.

05/19/2026

Lupus impacts far more than physical health alone.

For many people living with lupus, the disease affects employment, productivity, caregiving responsibilities, and financial stability in ways that are not always visible to others.

Many continue working while managing pain, fatigue, flares, appointments, medications, and family responsibilities, often while feeling pressure to keep functioning as though nothing has changed.

Because lupus is an invisible illness, many people face misunderstanding in workplaces and everyday life despite the significant impact the disease can have.

Behind every statistic is a person trying their best to balance health, work, and daily responsibilities all at once.

Lupus is often invisible.
Its impact is not.

Learn more: https://www.lupuscanada.org/lupus-awareness-month-facts-canada/

05/15/2026

A special thank you from Lupus Canada CEO Leanne Mielczarek 💜

This month has been filled with advocacy, awareness, connection, and community.

Thank you to everyone who has supported Lupus Awareness Month so far. Your voices, stories, fundraising efforts, and advocacy are helping move awareness forward.

Let’s keep the momentum going through the rest of May 🦋💜.

It is not too late to join the challenge, learn more: https://www.canadahelps.org/en/charities/lupus-canada/p2p/lupus-1000-2026/

05/15/2026

When Yaneisy was just 10 years old, she was diagnosed with systemic lupus after experiencing seizures, severe joint pain, and inflammation around her heart and lungs.

Over the years, lupus shaped many parts of her life, but it also inspired her to ask deeper questions about the immune system, research, and patient care.

Today, Yaneisy has completed her Master’s in Immunology at Université Laval and has been accepted into a PhD program where she will continue pursuing lupus research and advocacy.

This year also marks her third year participating in the Lupus 1000 Challenge.
Through research, storytelling, and advocacy, Yaneisy continues to help make lupus more visible while inspiring others within the lupus community.

Thank you, Yaneisy, for continuing to turn awareness into action. 💜

Learn more about the Lupus 1000 Challenge: https://www.lupuscanada.org/lupus-1000-challenge/

05/14/2026

Simple recipes can still feel comforting and delicious.

These 3 ingredient date cookies are soft, chewy, naturally sweetened, and made with ingredients you likely already have at home. They’re gluten free, dairy free, and perfect for a quick snack, lunchbox treat, or something cozy to enjoy with coffee or tea.

Made with just:
• Rolled oats
• Medjool dates
• Nut butter of choice

Optional: dip in melted dark chocolate for an extra treat.

View the recipe: https://www.lupuscanada.org/3-ingredient-date-cookies/

Thank you to Jamey Kay from With Love From Jamey for sharing another nourishing recipe with the Lupus Canada community.

05/13/2026

Living with lupus can often mean navigating uncertainty, delayed diagnosis, and the feeling of not always being heard.

Throughout the Patients’ Choice Award campaign, we have heard powerful stories from people across Canada about the rheumatologists who changed that experience for them through compassion, trust, advocacy, and truly listening.

These stories are a reminder that compassionate care matters deeply. Feeling heard, supported, and believed can change the course of a lupus journey.

More than 300 votes have already been submitted for the 2026 Patients’ Choice Award for Canadian Rheumatologist of the Year, recognizing physicians who have made a meaningful impact in the lives of people living with lupus.

Phase 2 voting closes May 15, and the recipient will be announced the week of May 18.

Thank you to everyone who has shared their story and helped recognize extraordinary lupus care in Canada. 💜

Vote today: https://www.lupuscanada.org/lupus-rheumatologist-award-in-canada/

05/12/2026

Thank you to everyone who helped make lupus visible this World Lupus Day 💜

Over the past few days, people across Canada came together to help make lupus visible. From wearing purple, to lighting up landmarks, sharing stories, participating in the Lupus 1000 Challenge, and spreading awareness online, every action mattered.

To everyone who supported, shared, donated, participated, or simply helped start a conversation about lupus: thank you.

Lupus Awareness Month continues throughout May as we continue working toward better awareness, research, care, and support for Canadians living with lupus.

Because people living with lupus deserve better 🦋💜.

05/10/2026

On May 10, we light up in Purple to show support and raise awareness for Awareness Month💜

Lupus is a complex autoimmune disease that is often misunderstood or overlooked. Raising awareness helps foster empathy, encourage earlier diagnoses, and support ongoing research and treatment advancements.

Lupus Canada | |

05/10/2026

Today is World Lupus Day 💜

Lupus is a complex autoimmune disease that affects millions of people worldwide, yet it remains widely misunderstood and too often invisible.

Often called “The Disease of 1000 Faces,” lupus can affect nearly any organ system in the body and presents differently in every individual. For many people living with lupus, the realities of fatigue, pain, flares, uncertainty, and delayed diagnosis are part of daily life.

This World Lupus Day, we are raising awareness, fostering understanding, and advocating for better care, research, and support for everyone impacted by lupus.

Because people living with lupus deserve better.

Together, we can help make lupus more visible.

Get involved today: https://www.lupuscanada.org/lupus-awareness-month/

05/10/2026

This Mother’s Day and World Lupus Day, Lupus Canada is sharing Diana’s story.

For more than 30 years, Diana has lived with lupus, navigating uncertainty, loss, resilience, and ultimately hope. In this powerful video, she reflects on the realities of lupus, the heartbreak of being told pregnancy could place her life at risk, and the journey that led to the birth of her twin daughters through surrogacy.

Lupus affects far more than physical health. It impacts families, futures, relationships, and the moments people dream about long before diagnosis.

Because people living with lupus deserve better.

This Mother’s Day, we are thinking of all mothers and families impacted by lupus.

Watch Diana's Story: https://www.lupuscanada.org/lupus-and-motherhood/

05/09/2026

Tomorrow is World Lupus Day 💜

On May 10, people across Canada and around the world will wear purple to help raise awareness for lupus and show support for those impacted by this complex autoimmune disease.

Whether you wear purple at work, in your neighbourhood, at home, or in your community, every action helps spark conversation and bring greater visibility to lupus.

Because people living with lupus deserve better.

Tomorrow, join us. Wear purple. Share your photos. Help make lupus visible.

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https://lupuscanada.org/

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