09/15/2026
Let’s Talk — About Posting Death Notices
From time to time, people may wonder why the ALS Society of New Brunswick and Nova Scotia posts about the passing of some members of our ALS community, but not others.
In the past, we have very occasionally shared the passing of someone who had a significant public presence or whose involvement with the Society and the broader ALS community was particularly visible.
We do not routinely post notices when someone in our ALS community dies. This is a thoughtful and intentional choice.
ALS is a difficult journey, not only for the person living with the disease, but for families, caregivers and others who are walking their own ALS journey. Frequent notices of death can affect people in very different ways and, for some, may bring fear, anxiety or grief at a time when they are working hard to live fully in the present.
It is also important to say this: a public tribute is not a measure of the importance of a life.
Every person we have the privilege of knowing matters. Every life has its own story and its own circle of influence — family, friends, neighbours, caregivers and communities who have been changed simply because that person was part of their lives.
Sadly, in the past few weeks, we have said goodbye to several people in our ALS community.
We honour each of them.
We honour the fierce journey they travelled, the courage they showed, the love they gave and received, the memories they created, and the difference they made in their own corner of the world.
And we hold their families and friends close in our thoughts as they begin the difficult journey of carrying those memories forward.
Not every life will be recognized on our social media pages. But every life is remembered, and every life matters.
