10/06/2026
“Since my 20s, I did every test under the absolute sun,” Lauren recalls.
At one point, doctors thought she had Multiple Sclerosis.
It was only after a severe attack and a stay in the Intensive Care Unit (ICU) that Lauren’s metabolic disorder was identified by the lab at the RMH as Acute Intermittent Porphyria (AIP).
“Broadly, patients can experience symptoms including severe abdominal pain, nausea, vomiting, headaches, nerve damage, seizures, and occasionally it can be fatal,” Associate Professor Gayle Ross, Head of Dermatology Research at the RMH, says.
Lauren describes the moment she was referred to the RMH Porphyria Expert Centre as life-changing. “Since starting to manage my AIP symptoms, I'm gradually doing more and more in life”, she said.
“I've got two kids; I’m being a full-time productive parent, and I am able to do more, like help my partner and his business as time goes on.”
Two weeks ago, Lauren started a new treatment that was previously tested in research trials at the RMH between 2017 and 2021. The new treatment will help manage her acute symptoms, helping her get back to doing what she loves most.
Read Lauren’s story: https://f.mtr.cool/zizmxdzxws