21/06/2026
I've been asked this quite a bit, and I understand why. I've attended my fair share of meetings that haven't felt productive. Sometimes they'd even feel disheartening or frustrating to those of us sitting around the table.
I've sat at those tables wearing a few different hats over the years. For a long time as a Social Worker within the Department of Education, and then, in more recent years, with a different hat on: there as an 'external professional', supporting families as a parent coach and social worker. (These days the hat is different again, but more on that in Part 3.)
It's been a little over 3 years since I began offering parent coaching, supporting parents in navigating all that's involved in raising neurodivergent gems. Very quickly, it became apparent that most of the parents coming to talk with me were raising children with a little-known neurotype: Pathological Demand Avoidance, or the often-preferred Persistent Drive for Autonomy.
My role was to walk alongside parents as they deepened their own understanding and adjusted both their parenting and their lifestyles to accommodate PDA.
Most were deep diving, learning all they could. And then came the challenge of communicating it all with school, and whether school could make the adjustments needed.
I found myself attending school meetings with well-being, disability inclusion, teachers and leadership, alongside parents and fellow allied health colleagues. Usually we'd have thirty minutes together to discuss, what felt like a radical shift in understanding and practice. Rarely did we get anywhere near the conversation we needed to have for this to happen.
I'd leave wishing for something that could help. The reality is that school meetings are often structured to move through an Individual Education Plan, sometimes that process is a barrier to a bigger conversation that might need to occur. The other reality is that our Education system was never designed with neurodivergent children in mind, so there's also a bigger challenge at play for all of us — trying to make adjustments within a structure that is at odds with allowing the shift to genuinely be effective. Con'td in comments