Walking with Madi

Walking with Madi A page to share in the journey of Madi, a precious little lady who was diagnosed with Aicardi Syndrome. It's a place to encourage her and her family.

Madison Elizabeth was born on Thursday June 6, 2013. She weighed 7lbs 8oz & 20 inches long. She was born on time by c-section due to the cord being wrapped around her neck . During her 2 week check up on June 21st her pediatrician sent us to get an ultrasound of her brain since her head measured too big. Immediately we were sent down to St.Pete to All Children's Hospital. There she was diagnosed w

ith Hydrocephalus. On June 22nd she had surgery to have a reprogrammable VP Shunt placed. It wasn't long after that we were informed of her abnormalities with her brain. Then we learned that she has coloboma of the optic nerves and she may not be able to see. At the beginning of August she started having seizures and started seeing her wonderful neurologist. August 22nd she was finally diagnosed with Aicardi Syndrome. She is currently taking Keppra along with Clonazepam. She has been fighting ever since. Email is: [email protected]

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501 6th Ave S
Saint Petersburg, FL
33701

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