Cystic Fibrosis Foundation - Kansas Chapter

09/13/2026

Happy Grandparents Day! When someone you love is living with cystic fibrosis, every act of support matters. Today, we celebrate the grandparents and grandpersons whose unwavering love, encouragement, and dedication help make a difference in the lives of people with CF and their families.

09/10/2026

Join a peer-led, small-group discussion for Hispanic adults with cystic fibrosis and parents or caregivers of Hispanic individuals with CF Sept. 22 at 9 p.m. ET. You’ll have an open space to connect, share experiences, and support one another. Discussion groups will be available in English and Spanish.

09/09/2026

Give today to DOUBLE your impact for people still waiting for treatment: https://rva-photo-booth.my.canva.site/2026annualmatch

Better care and breakthrough therapies have raised the median predicted survival for someone born with cystic fibrosis from 35 two decades ago to 66 today. But for thousands still waiting for a modulator that works for their mutation, it's nearly twenty years lower. Your donation funds research to close the gap—and gets us closer to a cure for everyone.

Between now and December 31, your new or increased gift to the annual fund is DOUBLED up to $270,500.

09/08/2026

The Cystic Fibrosis Foundation takes Great Strides all year long, and you can too!
When you donate to one of the Kansas Chapter's Great Strides Walks this month your donation will have an even bigger impact thanks to some incredible supporters.

Thanks to the generosity of Bill & Becki Bassette, Jill Nilson & Stephanie Bush, and Latimer, Sommers & Associates your donation to Kansas City Great Strides or Wichita Great Strides or Southwest Missouri Great Strides during the month of September 2026 will be matched, dollar-for-dollar, up to $10,000.

Donate today to one of our Chapter's Great Strides and your donation will be doubled!

Click here to visit our Chapter's Great Strides websites -- https://qr.cff.org/YS5qK5

09/07/2026

09/05/2026

As a parent of a child with cystic fibrosis, you are an important advocate for their success at school. Accommodations such as an Individualized Education Program (IEP) or a 504 Plan can help support your child's health, learning, and overall well-being in the classroom.

Learn more about school accommodations and resources to help ensure your child has the support they need to thrive at school: https://www.cff.org/managing-cf/individualized-education-programs-ieps-and-504-plans

09/03/2026

Thank You for Taking Aim at Cystic Fibrosis!

All of us at the Cystic Fibrosis Foundation are grateful that you were a part of the 2026 Shoot for the Cure. Thanks to your generosity, enthusiasm, and commitment to our mission, we were able to gather for an unforgettable two days of connection, competition, and impact.

Thanks to your outstanding support, the 2026 Shoot for the Cure has raised $153,816 for the Cystic Fibrosis Foundation! This includes outstanding funds we are projecting to come in.

09/02/2026

Have 10 minutes? Take the Annual CF Insights survey to share what’s working, what’s hard, and what would make a real difference for the CF community.

Results will help guide CF Foundation decisions around research, care, and support — and ensure researchers and clinicians have a clearer understanding of the evolving needs of the CF community.

The survey is open to everyone in the community and is available in English and Spanish. Share your anonymous insights by Sept. 7: https://cff.qualtrics.com/jfe/form/SV_cXQWcpMTUVgPDhA?Source=33

09/01/2026

LAST CALL FOR ONLINE TICKETS! Join us for a rooftop view of the sun setting over the Kansas City skyline and enjoy refreshing cocktails, delicious small plates and live music.

Grab your friends, family and co-workers and join us for an evening of great conversation, exceptional tastings, and impactful connections. New ticket options available!

Visit our bio for ticket information.

09/01/2026