Super Cystics

Super Cystics All Things CF-Related in Upstate New York We realized that there's a lot going on in our community and we don't always know it!

Created by a group of women who have Cystic Fibrosis (CF), our hope is that this FB page will be a resource where we share helpful information related to living with CF in New York's Capital and surrounding areas. Please use this site to post information about activities, events or fundraisers open to the public, share news about CF treatments, trials, news/current events related to a cure...and

feel free to offer encouragement and personal updates. For information about Cystic Fibrosis, go to www.cff.org.

**"SUPER CYSTICS" is what some of us were called by hospital staff and medical students in our younger, super-healthy days. We like to think that ALL people with CF are super. **

03/15/2016

Apply for the Exercise for Life Scholarship Today! Exercise for Life Scholarship Application Deadline: June 10, 2016 You must start logging your exercise routine on March 13th to be eligible. Download the log here. Doctors and CF centers have made it clear: when it comes to CF, exercise saves lives.…

Check out this opportunity!
03/11/2016

Check out this opportunity!

03/04/2016

The Cystic Fibrosis Foundation will be set up at the Adirondack Sports Expo this Saturday and Sunday at the Saratoga City Center. If you are around this weekend, stop by and see us! We will be promoting our Cycle and Climb events, in addition to Central New York's Extreme Hike event! - Adirondack Sports Summer Expo

Sound familiar?
03/01/2016

Sound familiar?

Thank you to all who participated and congrats to those who made it up the stairs! 🏆👍🌹💜
02/28/2016

Thank you to all who participated and congrats to those who made it up the stairs! 🏆👍🌹💜

This is the 28th year teams and individuals have raced up 809 steps to raise money for research and advancing medications for the disease.

FYI --
02/26/2016

FYI --

Earn 50 dollars with a one-time blood collection.

Anyone try this to cover a PICC? Any product recommendations to help a cyster out?!
02/26/2016

Anyone try this to cover a PICC? Any product recommendations to help a cyster out?!

A waterproof protector for adults who require elbow protection only, for example to cover a PICC line or midline.  This LimbO protector has two seals which will seal 4 inches above and 4 inches below the elbow. Suitable for the bath or shower. The M75 will fit an upper arm circumference between 12"…

02/26/2016

Michelle Stroebe, MS, RD, Adult CF Center nutritionist at Stanford, and CFRI-funded researcher Sara Modlin discuss the prevention and management of CF-relate...

02/25/2016

***Don't miss this important opportunity!

CYSTIC FIBROSIS
FAMILY TEACHING DAY
Saturday
April 2, 2016
8:30am - 2:30pm
The Hilton Garden Inn
Troy, NY
Presented by the Pediatric and Adult CF Care Center Staff
of Albany Medical College & the Cystic Fibrosis Foundation
RSVP requested to John Nash 262-5128
To reduce the spread of infection attendance at this event will be limited to family members and caregivers only.

Wonderful follow up story about our amazing friend! 💚♻️💙🌹. http://www.timesunion.com/tuplus-local/article/Lung-transplan...
02/25/2016

Wonderful follow up story about our amazing friend! 💚♻️💙🌹. http://www.timesunion.com/tuplus-local/article/Lung-transplant-for-Guilderland-woman-like-a-new-6850179.php?cmpid=fb-mobile

With lung function now at 100 percent, no rejection issues or complications, her physician at Duke said she can return to her home in Guilderland in early April, more than two months ahead of schedule. Nichols, a retired cardiovascular technician at St. Peter's Hospital, and her husband, Don, who wo…

How lucky we are to have these amazingly devoted folks fighting for us! 🌹💋💜
02/21/2016

How lucky we are to have these amazingly devoted folks fighting for us! 🌹💋💜

Address

Albany, NY
12208

Website

Alerts

Be the first to know and let us send you an email when Super Cystics posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Super Cystics:

Shortcuts

Share