16/06/2026
Possibly slightly divisive and controversial, but let's talk PIP ♿️⚠️
Trying to get Personal Independence Payment (PIP) after a brain injury can be incredibly difficult. Even 2 months after a 5 month hospital stay and having a quarter of your skull replaced among many other physical and invisible injuries, being rejected for any support from DWP.
Brain injuries are often invisible. Many of the challenges people face—memory problems, cognitive fatigue, difficulties with concentration, executive dysfunction, sensory overload, anxiety, and reduced processing speed—aren't immediately obvious to anyone.
The PIP process can feel particularly challenging because it often requires people to explain and repeatedly justify difficulties that they live with every day. Many of us have spent months or years trying to adapt, develop coping strategies, and appear "fine" on the outside. Then we're asked to prove just how much our condition affects us.
A brain injury doesn't only impact someone physically. It can affect planning, decision-making, communication, managing medication, preparing food, travelling independently, handling finances, and many other aspects of daily life.
Too often, people with brain injuries feel that they aren't believed because they don't "look disabled." The reality is that invisible disabilities are still disabilities, and the barriers they create are very real.
I was eventually awarded PIP initially after several months of giving medical evidence and supporting letters from various professionals. Then, a month short of the 3 year anniversary of my accident, I suffered my first seizure which lasted over 20 minutes, and I was subsequently diagnosed with post traumatic epilepsy, I direct consequence of my TBI - And the DWP then decided to take away my PIP and I have been fighting a never ending battle since. Currently awaiting my appeal.
The PIP system should recognise the complex and life-changing effects of brain injury, not make people fight to prove their struggles over and over again.