Sickle Cell Awareness Group Of Ontario(SCAGO)

Sickle Cell Awareness Group Of Ontario(SCAGO) A not-for profit organization dedicated to educating, raising more awareness about sickle cell disease as well as supporting those living with the disease

The Sickle Cell Awareness Group of Ontario (SCAGO) is a leading non-profit organization dedicated to improving the lives of individuals living with sickle cell disease and their families. Founded in 2005, SCAGO works to bridge gaps in healthcare, foster inclusive community support, and advocate for systemic change that ensures equitable care and resources for sickle cell warriors. Through education, public awareness, and policy advocacy, we empower patients, caregivers, and healthcare professionals to make informed decisions and drive progress. We collaborate with healthcare providers, researchers, policymakers, and diverse communities to advance knowledge, champion equity, and amplify the voices of those affected by sickle cell disease in Ontario. Our focus areas:
• Patient and caregiver support
• Education and awareness campaigns
• Research and clinical advocacy
• Policy change for equitable healthcare
• Youth engagement and leadership

Join us as we work towards a future where every individual living with sickle cell disease has access to comprehensive care, informed support, and a strong community.

This Sickle Cell Awareness Month, SCAGO will be spotlighting the experiences of individuals living with sickle cell dise...
09/14/2026

This Sickle Cell Awareness Month, SCAGO will be spotlighting the experiences of individuals living with sickle cell disease. Read Jemima's below and share this post to spread awareness and engage others in the community. We hope it will resonate with many of you.

"I was born with a sickle cell disease with the SS genotype. I had to complete some blood work every six weeks and the healthcare workers are very helpful. I had a stroke 4 years ago in 2021. I was home alone at Waterloo and I didn't know what was going on. My sister called and I managed to pick up the phone and asked her to call an ambulance. I was on the floor shaking. When I got to the hospital, they ran some test to find out what happened - understanding, reading or writing usually caused by brain injury or stroke.

I could not talk. My mom came from Nigeria to stay with me for 1 year to help me get back on my feet. Therapy to improve my speech.
I want to thank God for saving my life and everything he has done."

Whether you have sickle cell disease, are a caregiver, or a provider, we want to hear from you. Help us share real stories this September by submitting your here: https://tinyurl.com/SCAGOSCDStory

🏃‍♀️ Join   at the Waterfront Marathon 5K in Hamilton!Whether you’re ready to run, walk, fundraise, or donate, there’s a...
09/11/2026

🏃‍♀️ Join at the Waterfront Marathon 5K in Hamilton!

Whether you’re ready to run, walk, fundraise, or donate, there’s a way for everyone to be part of Team SCAGO. Your support helps raise awareness and strengthen support for the sickle cell community.

How to get involved:
✔️ Register for the Hamilton 5K or 10K
✔️ Join or create a team
✔️ Fundraise for "Sickle Cell Awareness Group of Ontario" and invite your friends and family to support you
✔️ Donate if you can’t attend in person

🔗 Register or donate: https://tinyurl.com/HamiltonRun2026

📅 Saturday, October 31, 2026
⏰ 9:00 AM start
📍 Confederation Park, Hamilton, ON

This  , SCAGO will be spotlighting the experiences of individuals living with sickle cell disease. Read Manahil's   belo...
09/10/2026

This , SCAGO will be spotlighting the experiences of individuals living with sickle cell disease. Read Manahil's below and share this post to spread awareness and engage others in the community!

"My story with sickle cell disease began before I was old enough to tell it.

I was born one month prematurely. Three days after my birth, my mother was told that her baby girl might not live beyond forty days. I spent 65 days in an incubator, followed by predictions that I would not reach my first birthday, then three, then five.

Two weeks before my fifth birthday, my condition became critical. A doctor told my mother that I might not survive another 24 hours. She chose to celebrate life. She had a dress made for me from fabric once used to wrap the ceremonial banners of Karbala, and dressed me in it for my fifth birthday. I still have that dress, 35 years later.

I grew up learning that sickle cell disease was part of my life, but it would never define who I was. I studied, worked, earned a PhD, built my career, and eventually turned my lived experience into advocacy for people living with sickle cell disease.

Later, I faced another challenge: Moyamoya disease, a serious cerebrovascular complication. It taught me that strength is not about ignoring illness. It is about understanding it, listening to your body, knowing your limits, and continuing with purpose.

Today, I do not tell my story to say that I defeated sickle cell disease.

I tell it because a diagnosis can describe a condition, but it should never define a person.

My mother was once told that I would not live long.

Today, I choose to make every day I have part of a legacy of awareness, responsibility, and service."

Interested in sharing your unique lived experiences with sickle cell diseases? Whether you have sickle cell disease, are a caregiver, or a provider, we want to hear from you! Help us share real stories by submitting your here: https://tinyurl.com/SCAGOSCDStory

THUNDER BAY SICKLE CELL AWARENESS MONTH COMMUNITY EVENT!SCAGO is excited to bring our first-ever Sickle Cell Awareness M...
09/09/2026

THUNDER BAY SICKLE CELL AWARENESS MONTH COMMUNITY EVENT!

SCAGO is excited to bring our first-ever Sickle Cell Awareness Month Community Event to Thunder Bay in collaboration with NorWest Community Health Centres (CHC)!

Join us for an afternoon of connection, education, and community as we come together to raise awareness and celebrate the strength of individuals and families impacted by sickle cell disease.

📅 Saturday, September 19, 2026
🕧 12:30 PM – 3:30 PM
📍 DaVinci Centre
340 Waterloo St. S., Thunder Bay, ON

You can expect Community Resource Booths, Networking Opportunities, Photo Booth, Lunch & Refreshments, and Raffle Prizes!

Registration is required! https://www.surveymonkey.com/r/DH2PJJ7

We look forward to bringing the Thunder Bay community together for an afternoon of awareness, support, and connection!

🩸 Join SCAGO’s Partners for Life Team!SCAGO is committed to increasing blood donation by reducing barriers to participat...
09/08/2026

🩸 Join SCAGO’s Partners for Life Team!

SCAGO is committed to increasing blood donation by reducing barriers to participation and encouraging more individuals to become lifesaving donors, in partnership with .

Here’s how to join:

Create an account at tinyurl.com/scagoPFL or download the GiveBlood app on the Google Play Store or Apple App Store.
Sign up to join the SCAGO team.
Use Team ID: SICK327620
Select an appointment and donate blood.

Your donation can make a real difference in your community. ❤️

📢 SCAGO is hiring! Join a team dedicated to supporting, empowering, and serving the sickle cell community.We’re looking ...
09/07/2026

📢 SCAGO is hiring! Join a team dedicated to supporting, empowering, and serving the sickle cell community.

We’re looking for:
• GTA Chapter Lead & Patient Wellbeing Coordinator
• Windsor-Essex Chapter Lead & Patient Wellbeing Coordinator
• Media, Marketing & Publicity Specialist
• Education Coordinator

Ready to make an impact?

Learn more & apply:
https://tinyurl.com/SCAGOJobs

🏃‍♀️ Join Team SCAGO at the Waterfront Marathon 5K in Hamilton!Whether you’re ready to run, walk, fundraise, or donate, ...
09/04/2026

🏃‍♀️ Join Team SCAGO at the Waterfront Marathon 5K in Hamilton!

Whether you’re ready to run, walk, fundraise, or donate, there’s a way for everyone to be part of Team SCAGO. Your support helps raise awareness and strengthen support for the sickle cell community.

How to get involved:
✔️ Register for the Hamilton 5K and select SCAGO
✔️ Join or create a SCAGO team
✔️ Fundraise and invite your friends and family to support you
✔️ Donate if you can’t attend in person

🔗 Register or donate: https://tinyurl.com/HamiltonRun2026

📅 Saturday, October 31, 2026
⏰ 9:00 AM start
📍 Confederation Park, Hamilton, ON

  Toronto tickets are SOLD OUT!Thank you to everyone who registered for the Waterfront Marathon 5K and chose to stand wi...
09/03/2026

Toronto tickets are SOLD OUT!

Thank you to everyone who registered for the Waterfront Marathon 5K and chose to stand with SCAGO and the sickle cell community! Now, let’s keep the momentum going. Our goal is $25,000 — help us get there!

You can make an impact by:

🔗 Donating or supporting Team SCAGO: https://tinyurl.com/SCAGORunDonate

Every donation brings us one step closer to $25,000!

✔ Donating to SCAGO
✔ Fundraising with your network
✔ Sharing our campaign to spread the word

📅 October 17, 2026 | 📍 Toronto

Looking for your next career opportunity? Join us at the SCAGO Job Fair!SCAGO is excited to collaborate with Black Creek...
09/02/2026

Looking for your next career opportunity? Join us at the SCAGO Job Fair!

SCAGO is excited to collaborate with Black Creek Community Health Centre and Clear Cell to bring you an afternoon focused on career opportunities, professional development, and connection.

Explore job opportunities, connect with hiring teams, submit your resume, and get practical tips on job searching, interviews, and career development. You’ll also have the opportunity to network with other young professionals.

Register here! https://tinyurl.com/scagocareercrawl
📅 Saturday, October 24, 2026
⏰ 2:00 PM–5:00 PM
📍 Black Creek Community Health Centre
1 York Gate Blvd #202, North York, ON M3N 3A1

Bring your resume and come ready to connect, learn, and take the next step in your career!

September is Sickle Cell Awareness Month, and we want to hear your  !Are you living with sickle cell disease or supporti...
09/01/2026

September is Sickle Cell Awareness Month, and we want to hear your !

Are you living with sickle cell disease or supporting someone who is? This September, SCAGO is creating space for our community to share their experiences, voices, and messages of hope, strength, and awareness.

📸 Share your photo and story (up to 150 words) to be featured across SCAGO’s social media channels throughout Sickle Cell Awareness Month.

🔗 Submit your : http://tinyurl.com/SCAGOSCDStory

Help us raise awareness by putting real stories at the heart of the conversation.

Address

330-5109 Steeles Avenue W
Toronto, ON
M9L2Y8

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+14167454267

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