09/14/2026
This Sickle Cell Awareness Month, SCAGO will be spotlighting the experiences of individuals living with sickle cell disease. Read Jemima's below and share this post to spread awareness and engage others in the community. We hope it will resonate with many of you.
"I was born with a sickle cell disease with the SS genotype. I had to complete some blood work every six weeks and the healthcare workers are very helpful. I had a stroke 4 years ago in 2021. I was home alone at Waterloo and I didn't know what was going on. My sister called and I managed to pick up the phone and asked her to call an ambulance. I was on the floor shaking. When I got to the hospital, they ran some test to find out what happened - understanding, reading or writing usually caused by brain injury or stroke.
I could not talk. My mom came from Nigeria to stay with me for 1 year to help me get back on my feet. Therapy to improve my speech.
I want to thank God for saving my life and everything he has done."
Whether you have sickle cell disease, are a caregiver, or a provider, we want to hear from you. Help us share real stories this September by submitting your here: https://tinyurl.com/SCAGOSCDStory