Cure4 Cystic Fibrosis Foundation

Cure4 Cystic Fibrosis Foundation Raising funds to find a cure for cystic fibrosis.

Raising funds to support research into the development of a cure for the airway disease caused by cystic fibrosis.

Please join us in welcoming the newest members of the Cure4CF Board. 🧡We are delighted to welcome Greg Knagge and Georgi...
07/06/2026

Please join us in welcoming the newest members of the Cure4CF Board. 🧡

We are delighted to welcome Greg Knagge and Georgina Liew, who joined the Board in April, bringing valuable expertise, leadership and strategic insight to our organisation.

We also warmly welcome Dr Bernadette Prentice, who joined the Board in December. Dr Prentice brings extensive clinical and research expertise, along with a strong commitment to improving outcomes for people living with cystic fibrosis (CF).

Our Board plays a vital role in guiding Cure4CF’s mission to accelerate research and drive meaningful change for the CF community.

We would also like to sincerely thank outgoing Director Clinton Jury for his eight years of dedicated service, leadership and contribution to Cure4CF. Clinton’s commitment to our mission and the CF community has helped shape our organisation’s growth and impact, and we are grateful for all he has given.

Please join us in welcoming Greg, Georgina and Bernadette, and thanking Clinton for his contribution. 🧡

"I wanted to share some really promising news from the European CF Conference today. Two studies—one from the UK and one...
06/06/2026

"I wanted to share some really promising news from the European CF Conference today. Two studies—one from the UK and one from Belgium—looked at kids with CF who had adverse events on their modulator therapy.

What’s amazing is that when they reduced the dose, these children saw fewer adverse events, especially in their mental well-being—while still keeping all the benefits of the treatment.

I know many families are weighing these choices, and I hope this offers some hope and a new perspective.

Let’s keep the conversation going!"

Cure4CF Head of Research - Professor Jodie Simpson

Today at the European Cystic Fibrosis Conference, we learned from a UK study of 159 adults with CF about a big question:...
05/06/2026

Today at the European Cystic Fibrosis Conference, we learned from a UK study of 159 adults with CF about a big question: to switch or not to switch from Trikafta to the new therapy, Alyftrek.

Around 78 participants switched, and the rest stayed on Trikafta.

Many stayed with Trikafta because they felt stable, while others preferred Alyftrek often due to taking it once daily or managing side effects.

After three months, no major differences were seen in lung function or BMI, but some did see improved liver function. Importantly, a small group did experience significant side effects and switched back.

This research is so valuable as we navigate this new era of CF care—not medical advice, but a chance to reflect: if you’re on Trikafta, or thinking of switching, what factors would you consider?

For families living with cystic fibrosis, treatments are not occasional. They are everyday life. For Simon, airway clear...
04/06/2026

For families living with cystic fibrosis, treatments are not occasional. They are everyday life. For Simon, airway clearance therapy is part of his daily routine — essential treatments designed to help keep his lungs clear and protect his breathing.

Like many people living with CF, the process can be exhausting. Time-consuming. Relentless.

Recently, Simon gained access to a specialised therapy device called the Pegaso cough assist system. For Simon and his family, the difference has been significant.

Treatments have become more effective. Less physically demanding. Easier to manage at home.

Moments like this matter deeply to families living with CF. Because behind every improvement is something powerful: hope.

Hope that treatments can become easier.
Hope that quality of life can improve.
Hope that children growing up with CF may face a different future than generations before them.

But access to therapies like this remains limited.

This EOFY, your support can help fund vital research working to improve access and change lives for more people living with CF.

Because what is helping Simon today could help many more families tomorrow.
Please donate now: https://tinyurl.com/simons-story

Cure4CF CEO Suzy Dimaline, and Head of Research Professor Jodie Simpson are attending the 49th European Cystic Fibrosis ...
03/06/2026

Cure4CF CEO Suzy Dimaline, and Head of Research Professor Jodie Simpson are attending the 49th European Cystic Fibrosis Conference in Lisbon this week.

Events like ECFS play an important role in bringing together the global CF community to learn, collaborate and share emerging research, clinical practice and innovation.

For organisations like Cure4CF, they are also an invaluable opportunity to listen, build relationships and gain insights that can help inform where investment, collaboration and research funding can have the greatest impact.

They're looking forward to a week of learning and bringing key insights home.

Thanks to our amazing donor who has funded their attendance to the conference.

Congratulations to Associate Professor Elena Schneider-Futschik on receiving the TSANZ Cystic Fibrosis SIG Award for her...
31/05/2026

Congratulations to Associate Professor Elena Schneider-Futschik on receiving the TSANZ Cystic Fibrosis SIG Award for her abstract, “Postnatal CFTR modulator exposure and eye morphology in DF508 CFTR rats” 🧡

This award recognises excellence in respiratory research and scientific communication, celebrating outstanding contributions to advancing knowledge and improving patient outcomes.

At Cure4CF, we are proud to support researchers like Associate Professor Schneider-Futschik, whose work is helping shape the future of cystic fibrosis (CF) care.

Associate Professor Schneider-Futschik is currently leading a Cure4CF-funded project exploring AI-driven early detection of colorectal cancer in adults with CF, addressing an important and emerging health challenge as people with CF live longer, healthier lives.

Learn more about Elena’s research and the work we’re funding to improve outcomes for people with CF: www.cure4cf.org/current-research-projects/research-projects-colorectal-cancer-cf

28/05/2026

Cystic fibrosis (CF) is relentless.

It doesn’t pause. It doesn’t let up. And for the CF community, neither can we.
Throughout CF Awareness Month, we’ve shared stories of science, persistence, progress, and the people driving change. But at the heart of it all is something simple:

Relentlessness.

The relentlessness of CF Warriors.
The relentlessness of families.
The relentlessness of researchers working to push what’s possible.
And the relentlessness of a community refusing to accept “good enough”.

This story captures that spirit.

Featuring CF Warrior Aveline and the clinicians and researchers helping to share the future. It reflects the fight we are in, the progress we are driving, and the future we refuse to stop believing in.

Because we will keep showing up.
We will keep pushing research forward.
We will keep trying, again and again and again.

Until Never Again.

In May 2014, Teresa’s world changed overnight.Her son Simon was just 17 months old when he was diagnosed with cystic fib...
27/05/2026

In May 2014, Teresa’s world changed overnight.

Her son Simon was just 17 months old when he was diagnosed with cystic fibrosis (CF). Until that moment, Teresa and her husband Harry had never even heard of CF. They only knew something wasn’t right.

There had been sleepless nights, endless coughing, high temperatures, and the quiet but persistent instinct every parent recognises. As a mother, Teresa knew. Trusting that instinct, they kept pushing for more testing, searching for answers that had so far remained out of reach.

When the diagnosis finally came, it was a shock.

And it came at a moment when life was already on the edge of change. Teresa was heavily pregnant with their second child, Savannah. Just two weeks after Simon’s diagnosis, she gave birth.

Two life-changing moments, back-to-back. One bringing new life into the world. The other introducing a lifelong disease they didn’t yet understand.

There was no roadmap. No preparation for what daily life with CF would demand. Suddenly, everything had to be learned quickly. Treatments. Hospital visits. Daily therapies. The constant responsibility of managing a condition that becomes part of everyday life without warning.

Today, Simon’s world is shaped by that reality. But he is so much more than his diagnosis.

To Teresa, he is her first-born. Her “first everything.” A resilient young person who has grown up knowing far more about treatments and hospital rooms than most children ever should, yet continues to meet life with strength and determination.

And like every parent, Teresa holds the same hopes for her son that every family does. A future where he is not defined by CF. A life where he has choices. A world where treatments are lighter, easier, and more effective than they are today.

Thanks to research, there is more hope than there once was. Better understanding. Better treatments. New technologies that are changing what care can look like for people living with CF.

But progress does not happen by chance.

This EOFY, your support can help fund the research and innovation changing what the future looks like for children and adults living with cystic fibrosis: https://tinyurl.com/simons-story

Because people like Simon deserve the chance to grow into their dreams.

🚨 Calling all teens with CF (12–18 years) 🚨A new clinical trial is opening soon — and you might be eligible to take part...
26/05/2026

🚨 Calling all teens with CF (12–18 years) 🚨
A new clinical trial is opening soon — and you might be eligible to take part.

Introducing the AIRtivity Trial
This Phase 3 clinical trial is investigating a new medicine designed to reduce inflammation in the airways — the kind that can lead to lung damage and ongoing infections.

What’s involved?
đź’Š A once-daily tablet
đź“… Participation for up to 18 months
Who may be eligible?
✔️ Aged 12 years or older
✔️ Weigh at least 35kg at your first visit
✔️ Have confirmed bronchiectasis (via CT scan — check with your CF care team)
✔️ Have experienced symptoms like persistent cough, recurrent infections, or frequent flare-ups
✔️ Have had at least one exacerbation (including if you're on modulator therapy)

Important to know:
Some conditions may exclude participation, including allergic bronchopulmonary aspergillosis (ABPA) or non-tuberculous mycobacterial (NTM) infection.

Clinical trials like this are essential for developing new treatments and improving outcomes for people with CF.
Speak with your CF care team to learn more about whether this trial could be right for you.

👉 Interested: https://clinicaltrials.gov/study/NCT06872892?locStr=Australia&country=AU&cond=Bronchiectasis&viewType=Card&term=airtivity&rank=1

In our 20th year as Cure4CF, and during CF Awareness Month, Cure4CF CEO Suzy Dimaline has been reflecting on ideas that ...
24/05/2026

In our 20th year as Cure4CF, and during CF Awareness Month, Cure4CF CEO Suzy Dimaline has been reflecting on ideas that stay with you long after you first come across them.

For Suzy, bacteriophages were one of those ideas.

Tiny viruses that act like nature’s own “superheroes”, seeking out and destroying harmful bacteria. The more she learned, the more she came to admire not just the science, but what it could mean for people living with cystic fibrosis today.

In this new blog, Suzy shares why bacteriophages have stayed with her, from that first moment of curiosity to seeing real progress in clinical research and patient outcomes.

It is also a reminder that what we are learning in CF has the potential to matter far beyond our community, especially as the world faces rising antibiotic resistance.

We hope you take a moment to read it. It is a reflection on hope, progress, and why we keep pushing forward.

👉 Read the blog here: www.cure4cf.org/cfmonth_reflection

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